On September 30, I gave a presentation about the ketogenic lifestyle for PWP at the Meander Medical Center in Amersfoort (Netherlands). For the first time, Meander had organized a day about all kinds of lifestyle aspects: meandermc.nl/zorg/specialis....
My neurologist who organized this day had invited me for this presentation. Maybe it is also interesting for some of you.?
My presentation is in the Dutch language, but that may not be a problem because on YouTube you can enable subtitles in the language of your choice. youtube.com/watch?v=FcVMipF...
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Peter-Jan
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Hi Fed, yes, I do a lot more, but I see the ketogenic lifestyle as the basis. I don't take any regular medication. What I do do: 1) exercise (LSVT-BIG), 2) hydrogen (Brown's gas), 3) infrared (wellred), 4) various supplements including methylene blue and lithium
Hi Fed, I suspect hydrogen is the active base ingredient. In my opinion, Brown's gas is not the panacea. I personally think hydrogen has a positive influence on the disease because hydrogen is the most powerful antioxidant. There are some studies that show that hydrogen can have an influence.
We have examined the effects of H2 treatment on acute central nervous system diseases and on chronic neurodegenerative diseases. We have also examined the various mechanism by which H2 exerts its neuroprotective effects H2 acts as a scavenger for OH−and ONOO−, affects neuroinflammation, preserves mitochondrial energy production, and possesses neuroprotective properties. Unlike more conventional drugs, H2 treatment, particularly the consumption of H2-rich water, has no known serious side effects and is effective for preventing the onset of neurodegenerative disease and aggravation of acute neuronal conditions.
Thanks again Peter for the kid, well-researched information. Hydrogen water seems interesting for our condition and also easy to prepare. If I'm not mistaken in this blog there has been little or no mention of hydrogen water. You have opened up a new scenario for me personally and it will constitute a new element for me to combile with diet, exercise, supplements and anything else we consider useful to fight the disease. I wish you the best.
Start the video and place the cursor on the image. At the bottom right you will see various buttons. First press the 'subtitles' button. You will then see the subtitles appear. Then you still have to have the right language. Then press the “settings” button (also at the bottom right) and then choose “subtitles”. Then press “automatic translate” and then you can indicate your preferred language.
Thanks Peter. I finally got there.I think the off putting thing for me of switching to keto is it takes a lot of thought and planning to start, as you suggest it's a lifestyle change. Especially with 3 others in my home.
I think I'll try the fasting though, say 7pm till 1pm as a start.
I tried watching the video with English subtitles. But the speaker was really distracting. He seemed so low-energy. And holding the microphone seemed to make him bend forwards at the waist. Or maybe the PD is affecting his posture.. I eat low-carb and use urinalysis strips to monitor ketones. I guess I don't do it right because my weight is not going down. Urine Ketones show at ++++ (+4) while glucose is +1. It reminded me at carbs must be kept at 50g or less.
Maybe try upping your fat? Don't forget that keto is not just low carb, it is also high fat. And maybe try getting your carbs below 30g? (And you kinda have to watch your protein too ...)
Another thing to consider is intermittent fasting--for me the easiest way is to skip breakfast.
ANOTHER idea is MCT oil: pour some in your coffee or simply take a spoon before each meal.
PS--been eating keto since I was diagnosed in 2016. It DID take planning to start, and some getting-used-to, but now it's second nature. And, since I'M the cook, others in the house eat my way, unless they wish to supplement. But really, there are so many things to eat, plus now, so many products out there, nobody complains.
Hard to know, since I've never NOT been on it since diagnosis. My progression has been pretty slow. Nine years in, my symptoms are still one-sided. I rarely take levodopa (sometimes a pill before exercise class).
But I do a bunch of other stuff too--I take ambroxol (I have a GBA mutation.) I take rapamycin, exenatide, quercetin, lithium, co-Q-10, Lion's Mane and rasagiline plus random vitamins. I exercise like a crazy person and as soon as it is cool enough to tolerate (we live in FL) I hot tub then jump in cold pool. (we don't have a sauna!) Heat/cold shock.
I don't know about hydrogen! (I mean, I know about H+ and oxidation, but not about swallowing it!) How does it get to where it needs to be?
“Molecular hydrogen has favorable physicochemical properties as a therapeutic antioxidant. It is electrically neutral and even smaller than molecular oxygen. As such it can easily penetrate cell membranes and diffuse into cellular organelles, such as the nucleus and mitochondria”.
i read the pages shown above. This stands out: "A New Approach for the Prevention and Treatment of Cardiovascular Disorders. Molecular Hydrogen Significantly Reduces the Effects of Oxidative Stress..." As an antioxidant it seems hydrogen can do no wrong. I don't see the connection with low carb diets but I plan to look into it. Years ago I had 100% obstruction of the LAD, the main coronary artery. It was fixed by putting a stent in but the pain (angina) is still there somewhat. Just yesterday on the treadmill the pain in the upper left side of my chest was dominant. It went away soon after stopping the exercise. But I wonder if something could be done. The article talks about infusing hydrogen into saline for SQ injection.
Hi Kaypeeoh, you are right there is no connection between H2 and low carb. The information I provided was in response to two questions I was asked. 1) by Fed1000: Do you take any therapy for Parkinson's in addition to your diet? And 2) by amykp: I don't know about hydrogen! How does it get to where it needs to be?
Thanks for the relies. I'm not worried about the angina. Years ago I would go jogging on my lunch hour. Eventually I'd develop chest pain and then I'd vomit. Then I'd feel better and could continue running. Someone saw me retching and told my wife who sent me to a doctor who sent me to a specialist who diagnosed the obstruction. The stent was -placed four years ago with no recurrence of the vomiting. The doctors say the pain is probably from collateral circulation that saved me; I have a five-decade running habit.
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