PS 128: Do any of you take PS 128 regularly... - Cure Parkinson's

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PS 128

smv123 profile image
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Do any of you take PS 128 regularly? Has it helped?

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smv123 profile image
smv123
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11 Replies
ForHealth1 profile image
ForHealth1

My son is now one half way through his fifth month of taking the drug. I do not see any change in his behavior, or physical performance. He continues with chronic constipation that requires 3 15 ounce doses of lactulose daily. He tells me the Neuralli makes him feel more calm. I question his response. It is very, very expensive. Momma Bear

park_bear profile image
park_bear in reply toForHealth1

Remedies for Parkinson's constipation healthunlocked.com/cure-par...

MAJ88 profile image
MAJ88

I use it daily and feel the difference when I don’t take it (due to traveling, as it needs to be stored in a cool place). I feel it definitely regulates my bowel movement and helps me stay stable. Sometimes I increase the dosage to two portions when I need it, and it always helps/works.

Deforel_Ch profile image
Deforel_Ch

I gave it to my mother but it was not helpful.

Missy0202 profile image
Missy0202

I've been taking it for years. I am not sure I can comment whether it is helpful or not. I know my gut issues have diminished but that could also be due to a number of other healthy changes I made since diagnoses.

docjleonard55 profile image
docjleonard55

No, but I went to PS 208 in Brooklyn!😀

michelagvolpe profile image
michelagvolpe

I take it once a day and it helps my gut very well. Not the PD symptoms

Lizzy9 profile image
Lizzy9

Hello ~ My HwP has been on the Neutrali PS-128 going on 4 months now. His anxiety is almost nonexistent and his tremor ( left sided) is way, way down.

I was noticing improvements sometime into his third month.

Changes in his protocol ~

11/1 - Neuro had him, over a 2 week period, double his C/L 25/100 for all three doses

11/1 - Started taking Gabapentin 100 mg (we added GABA 250 mg) at bedtime.

I have noticed increased improvements now that he is sleeping better (back to 8 hours) since the Gabapentin was added.

I do believe that some of (maybe a lot) of the improvements are from the Neutrali PS-128, but I cannot “prove” it, especially since I’m not good at documenting.

As far as his constipation goes here is his regime which works for him -

One scoop of Thorne Endermend at night

1/2 tsp in water of Best Naturals Magnesium Citrate at night

In the morning with breakfast he has 2 tablespoons of flax seeds that I grind for him.

I don’t know if the Neutrali PS-128 is helping with constipation or not.

This is what works for him. He was diagnosed almost 3 years ago and is 72 now. I don’t know if that is relevant or not. Also, we eat a very “clean” diet.

I hope this helps. Have a fabulous day!

Millbrook profile image
Millbrook

My husband has been taking 2 sachets of PS 128 nightly since May/June 2021. I believe that was around the time that I posted and shared with members of this forum. He continues to benefit from it, B1 and the Redlight light therapy. He is not on any medication.

smv123 profile image
smv123 in reply toMillbrook

Thank you for your response. Hope he is doing well? Does he have a pretty "normal" life???

Millbrook profile image
Millbrook in reply tosmv123

Yes he is completely normal. Thank God!🙏🏻

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