I am about to trial Safinamide. I’m in the uk and this is via the NHS. Does anyone have direct experience with this? I will give an update later!
Safinamide. Does anyone use this? - Cure Parkinson's
Safinamide. Does anyone use this?
Written by
goldiewan
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5 Replies
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I trialled it recently. By Day 4 I was struggling. By Day 5 I could not walk from the station to my clinic (a 8 minute walk took 20 minutes) due to severe rigidity of lower limbs starting at the top of my lower limb (glutes).
I thik the reason for that was not the drug itself but the faxt that I did not wean down my rasagiline for a week.
The reason I am givig you this negative report is to emphasise that it is worth checking with your specialist pharmacist attached to your movement disorder neurologist.
I am aso UK based. Normally I check the literature myself but this time I did not.
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