The Best Charity for Parkinson's Research

[Alock2020]

What is the best charity for Parkinson's research, and what is the worst? Anyone have an opinion on this?

[Michel0220]

I am a big fan of Cure Parkinson’s. They are focusing on disease modifying therapies and are supporting the Ambroxol phase 3 trial for instance.

[crewmanwhite]

All the charities I have examined and tried to contact are focused on symptoms control or "finding a cure" by employing drugs, surgeries or devices that are very profitable for the developers.

I cannot find one major PD charity focused on originating causes, reversing those causes (recovery) or eliminating those causes.

This is very sad.

There is some useful research on food and supplements at Bastyr University in USA led by Dr Laurie Mischley but this is underfunded and, therefore, limited.

If 1% of the total PD research budget annually was focused on originating causes without a western medical bias, engaging the best minds from western, eastern and complementary medicine plus those of use with personal experience, we could now be seeing thousands of people each year recovering from Parkinson's.

[djresd]

We have supported APDA and mainly Michael Fox Foundation. Fox delivers updates and sponsors web based info and advice.

[mhberman]

i would vote for Quietmind Fdn as one of the better charities as they do clinical research on technologies that reverse neurodegenerative disease and provide consultation not based on ability to pay. They have developed non drug noninvasive tools that improve dementia and Parkinsons symptoms Quietmindfdn.org

[Stillstandingstill]

Cure Parkinson's gets my vote. They are proactively looking for treatments and involved in several promising trials at the moment.

[SanMateoPD in reply to Stillstandingstill]

It's true. I have been researching and haven't found anything as good as them. They are running trials for what seems like very little money compared to the US trials. Perhaps because the requirements are different in the UK?

[Stillstandingstill in reply to SanMateoPD]

I'm not sure about the reason for the cost differences but perhaps partly because they have a focus on repurposing existing drugs.

[Rupa88]

not MJFF

Spending little on useless studies and a lot on their puppets and show off parties