Blood work : B1 level 100 I was told that... - Cure Parkinson's

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Blood work

Smittybear7 profile image
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B1 level 100 I was told that it is too high. Please advise Thanks

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Smittybear7 profile image
Smittybear7
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kevowpd profile image
kevowpd

I've little to suggest besides possibly taking less B1, but those who might have more will be helped (possibly) by you providing the following:

1. Who told you?

2. 100 what?

3. What form of B1 are you taking, how much of it and for how long?

4. What else are you taking?

Smittybear7 profile image
Smittybear7 in reply tokevowpd

PCP said blood work of 100 was too high.

Vitacost b 1 HCL 500 mg

Been taking it for a couple of years

Also take d3,co q 10,DHA,omega 3 d,NAc,super cal plus, magnesium complex,vitamin c,turmeric,neuropath-ease,homeopathy cortisol,osteo guard, vitamin k,b12 2000 with folate and b6

LagLag37 profile image
LagLag37 in reply toSmittybear7

If you could only take 3 of those supplements which 3 would you choose?

Esperanto profile image
Esperanto

Quitting seems indeed the best advice, but we lack the ‘normal’ values and further data. I have also found too high B1 values, so more or less having the same problem.  A blood test of November 3 only gave me the following result on January 9:

Vit. B1 Thiamine pyrophosphate SI > 184 nmol/l (Reference value 78-143)

So maybe my B1 value was even much higher at the beginning of the year. Immediately stopped B1 vitamin supplementation 100 mg. and vitamin B complex which also contains 25 mg B1. I started supplementation six months ago. Difficult to estimate when and with what dose you continue afterwards. Do any of you have an idea?

Gcf51 profile image
Gcf51

There is no UL for thiamin due to a lack of reports showing negative effects from high thiamin intakes. (UL: A Tolerable Upper Intake Level (UL) is the maximum daily dose unlikely to cause adverse side effects in the general population.) hsph.harvard.edu/nutritions....

Maybe higher than normal, but why is this a problem.

Mine was 260, I read somewhere not to take 24hr before test and second test was 44. Not saying 260 was a problem....

Esperanto profile image
Esperanto in reply toGcf51

Indeed, excess B1 will not pose a risk of toxicity for almost everyone. As with B6 (and B11, B12), there is, however, a link to neuropathy symptoms when deficient. In my case, a B6 deficiency-induced neuropathy is now causing problems again, probably due to an overdose of B6 after supplementation with the "safe" P5P form. Sporadic P5P does in fact appear to cause symptoms. The same is seen by orthomolecular therapists with B1 thiamine. I just don't want to take the risk of overdosing on the various B vitamins, but it is difficult to tell whether it is the P5P or the thiamine. I suspect the P5P anyway because the neuropathy symptoms are still worsening. Given the very short half-life of thiamine, the B1 level should return to normal. With B6, however, this can take several months, so the vitamin fasting is not yet effective. An individual approach and vigilance in the therapeutic prescription of higher doses of B1 and B6 remains important, but given the good results for most of us, it will not be a problem.

Smittybear7 profile image
Smittybear7 in reply toEsperanto

Thanks

Smittybear7 profile image
Smittybear7

Thanks my PCP keeps telling me I am taking too many vitamins .neurologist and movement specialist not familiar with b1 therapy. Don't share information about diet and supplements. Just say keep moving was told homocysteine 13.2 was high, cortisol high 25.2 .Don't have the other results. I had to ask for the blood work and I finally got PCP to order a stool analysis to check for parasites, IBS etc. Thanks for your input. Hope you are doing well!

CaseyInsights profile image
CaseyInsights

Curious as to what course of action (if any), did your primary care physician suggest for these readings, which you say are high -

(1) Homocysteine: 13.2 umol/L

(2) Cortisol: 25.2 mcg/dl

Smittybear7 profile image
Smittybear7 in reply toCaseyInsights

He hasn't responded yet.

CaseyInsights profile image
CaseyInsights in reply toSmittybear7

Clue us in if he does 🌹

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