Lately I have experienced times where I am in a conversation and will loose the word I want to say. I can see it but can't say it or I completely loose it. Its frustrating as all hell. Anyone else experience this??
Word loss: Lately I have experienced times... - Cure Parkinson's
Word loss
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Ponieboy
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36 Replies
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yes. Often. Very embarrassing.
Yes, all the time, usually the name of something, the key specific something that the conversation is centered on. It is happening to my wife also and we are both hard of hearing . We are not having those long conversations much any more . We are doing the best we can , very frustrating but we have been married over 50 years so we can both kinda read each others lips (and minds ). Now if I could just get her to turn around and face me when she talks. I am told by good authority that it is a very common problem that comes as a package deal with old age and does not necessarily indicate dementia.
I find that if I let it go and stop trying to remember that 10 minutes later I do remember. Unfortunately by that time every one has gone home.
Sounds like me -- just part of being 78. 
My mother even worse -- but she's 100!
Gymsack,I'm not sure why they deleted your reply about the trophy it made me laugh and feel good, thanks. Moderators, I'm curious why the quick finger?
Yes, all the time too.
Yes & I’m in a job in which correct use of language matters. If I’m going to launch into a complex explanation I now deliberately stall for a few seconds, pretending to do something else while I rehearse what I’m going to say. Oddly this doesn’t stop me losing the thread but it seems to help me recover quickly.
it happens to me, and, sometimes, I say the wrong thing, and get myself in trouble! It’s so frustrating!
Senior moment, now that can turn into days!
Welcome Ponieboy you are part of the afflicted masses!
It bugs me that I do it at 53...I sometimes wonder if uts PD related. I am researching a few things to add to the stack.
Vaca, I’m with you—I’m 60. Please report back on your research! Perhaps chocolate would help…🥰
Well, seeing i have a chocolate addiction, I dont think it helps much. I eat both milk and dark chocolates. I have a stash at work and home. I ferret it out when I get stressed. My go to for anxiety and stress relief. Dark chocolate is my favorite but lately it's been a bit more milk chocolate.
I use to experience it but most of it came back after I started taking C/L I was only 58 years old
happens daily. I even know sometimes what I’m going to forget, if I’m going to have a conversation with my doctor then I will print out salient notes and they will act as a reminder
Yes, very often and very frustrating.
I was diagnosed at 53 and was frustrated by that much of the time. My friends and family knew to fill in the blanks... but it was everyone else I feared having a conversation with. I started to shy away from social situations. I am not sure what has helped more... C/L, red coronet, or the stack of supplements I take, but things have gotten alot better.
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do you mind me asking what supplements you are taking? I take C/L and pramapexiole vitamin D
K2-D3, Cyto-C, Liposomal Glutathione, BROQ, Megaqunione, CDP-Choline, NAC, TruNiagin, Megasporebiotic, Probiotic PS 128, Fish oil, Ubiquinol, Lion’s mane, Adenosylcobalamin, Thiamine B1, Curcumin Ultra, L-Theanine, A.C.E.S + Zinc, Taurine, Magnesium glycinate, Magnesium L theonate. I was taking a b complex but my latest bloodwork showed I was high in B6 so I stopped.
same here. I am 56, noticed it about a year ago. it is only words...not forgetting my keys, or what I am doing, etc. Very frustrating and I find I just fumble a bit, or somehow find a word that is similar to get across what I am saying. Oddly it doesn't happen all the time. I am on Klonopin, under 1 mg for many years for sleep and was worried that could be the cause. I also think menopause. But I see here some males are getting it....It can be scary
Ponie.....Yes, more and more the past year or so unfortunately. I'm pretty sure it's PD related and waiting to find the word or another word at that moment can be agonizing. Not always sure what word will arrive under the "pressure" of the social situation. Sucks that even if it's with friends or family I feel the pressure on myself to spit it out already.
Just a little background I'm in my 16th year post dx and I've had to stop playing basketball the last couple of months due to shoulder surgery and I've gotten a lot worse PD wise since then. Rehabbing now, but won't be back on the court until April/May. Playing basketball has been my outlet mentally, physically and most of all socially. I exercise to make up for lack of playing, but the social aspect with a great group of guys has been excellent for me.. Happy New Year to all here and let's continue to battle this beast along with an unexpected breakthrough from the medical community.
Eric
Ever since college I would use tricks to find a missing word. For the word, beaver, I visualized the TV show, Leave it to beaver. I grew up speaking German. But moved to the US when I was 5 and managed to forget German. In high school I thought German would be an easy class but not so. The teacher demanded work. 50 years later I took a class in Spanish. I'd try to find a missing word in Spanish and German would pop into my head after 50 years of not speaking it. So the nerve endings still exist, they're just rusty, I guess. When I can't find a word now, I relax, wait a minute, and often the word will pop into my head.
Kayp,
I was a big fan of Leave It to Beaver but it must have sounded pretty different in German! You are probably right about the nerve endings still being useful but when you're having a conversation taking a minute to come up with a word just doesn't work unfortunately. It's pretty cool you know parts of free languages but that will be three languages in which you will be forgetting words.. not sure I love that!
You gave me the hard reminder I have got to move more. Been a lot of stress at home. My wife has had a lot of health issues this past couple of months and I have slowed down on the exercise. Come home from work, do my chores, take care of the chickens, help her out and then I find my lazy boy chair and hard nap for about an hour or so. Then its dinner time and before I know it. Its bed time... I need to get back to walking in the evenings and riding my bike on the weekends.
Ponie........I am sorry to hear about your wife not feeling so great lately. You have quite a full plate with your wife's care, career with its added stress and taking care of the house and all that work. Yet, you still must work in some exercise for your mind and body t o fight the Parkinson's Beast.
When I was diagnosed I decided to retire from a very stressful career so I could spend as much healthy time as possible my wife and young boys. They are now 22 and 25 so if I disappear in 10 years they will have had me for a reasonable amount of time to help them get started in this life. I was lucky that we could swing it financially with me retiring at 48, but an extra 10 plus years would have made a nice difference retirement wise.
What do you know, I didn't forget any words writing this to you. Be well and hang in.
Eric
It can also be a side effect of some drugs, in my case, topiramate, which is sometimes prescribed for pd but often prescribed for essential tremor.
I started the drug in my 40's and the word-loss effect was instantaneous, and funny, back then, because I was young, and didn't think much about aging and memory. Of course, it's still there, and not so funny. But it's always good to be able to blame something else if you can find it😜
I had this same issue, I'm now 64, it was so embarrassing and not as if I had forgotten the words, just couldn't get the right word out and would stutter as well. Once my medication was adjusted upward (new neurologist) that part of my brain started working again. I don't have the issue today. I totally believe it was PD related.
what are photo therapy patches?
Yes, me too. It's called word finding. Common deficit with PD and also some medications.
Is this the life wave patch? If so which one are you using?
I had a similar problem but I take citicholine and found it made a big difference.
I stopped and thought for a moment and then said to my wife."What did we do today"
She thought for a moment and happily said "We went to the hardware store and picked up ice melter and screws and something else " to which I replied " No that was yesterday".
We both had a good laugh and then went to where ever it was that we thought we were going. We will meet in the kitchen again in a while where I will tell her all about what I saw at the birdfeeder. She will tell me about her phone conversation with our daughter and grand daughter and all is well. NO idea what we did today yet maybe tomorrow, not important.
I know it might be important but we had to stop worrying so much , so we did.
She told my daughter the above and my daughter said "Eh, I wouldn't worry about it"
so Dont worry be happy
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