new rescue nasal spray: Has anyone tried... - Cure Parkinson's

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new rescue nasal spray

brettnmi profile image
12 Replies

Has anyone tried Imbrija?

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brettnmi profile image
brettnmi
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12 Replies
Santana35 profile image
Santana35

Imbrija is an inhaled form of Sinemet intended to reverse sudden fluctuations. I tried it but didn’t like how chunky the inhaled particles were and it turned my saliva black which I didn’t really mind but it was definitely weird!

brettnmi profile image
brettnmi in reply to Santana35

That sou

brettnmi profile image
brettnmi in reply to brettnmi

That sounds gross

Raphaekg profile image
Raphaekg

So it is supposed to be for PwP who want quick recovery from off periods. The packaging is impossible to navigate for PwP who have impaired fine motor skills and tons of tremors when off. I never got beyond that!

brettnmi profile image
brettnmi in reply to Raphaekg

that’s ridiculous What is wrong with people?

Raphaekg profile image
Raphaekg in reply to brettnmi

I spoke to someone from the company that makes it. They know the packaging is a problem for many folks with PD, but it degrades when exposed to humidity. That is the best their human engineering folks could do. Not good enough for me, even though my copay for it is reasonable.

Phusson profile image
Phusson

I used it a few times early morning before med schedule and it helped to jumpstart my first dose. I also tried it a few times for off periods and it was useful but I found that it wasn't worth the extremely expensive cost and it's not covered by my insurance.

Canddy profile image
Canddy in reply to Phusson

I am in the midst of trying it but seem to cough out most of the dose. I'm going to give it another go until I see my neuro at the end of this month. The packaging is a problem - the foil packets and the inhaler are hard to manipulate when you are going OFF (which is when you use the product). Will report back if my next attempts are successful.

brettnmi profile image
brettnmi in reply to Canddy

Thanks The replies here

have been discouraging I

Really wanted it to save me

B

Canddy profile image
Canddy in reply to brettnmi

I was hopeful as well...

Canddy profile image
Canddy in reply to brettnmi

Hello brettnmi - I am happy to report that with some practice I have gotten the hang of taking Inbrija - I only take one dose per day (two inhaled capsules) and it does help me with my mid-morning off. It is not miraculous by any means, but it is a small tool that can get you over a hump and make your day just a little better. It is worth a try!

brettnmi profile image
brettnmi

shoot! Mine probably won’t either. Thanks for letting me know

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