Barriers to exercise in parkinson

[Farooqji]

Exercise helps symptoms & slows disease progression, yet 41% with #Parkinsons do the same or less exercise than before diagnosis. Half don’t do recommended strength, balance & flexibility exercises. Others overdo it. Why? Personas give us a clue, as one size rarely fits all in pd

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[b5p10]

I have always done activities like Yoga or pilates but since developing PD 18 months ago I started doing exercises on YouTube specifically for PD. Most are from USA with delightful encouraging instructors and cover all aspects of symptoms from PD. So far I do not feel my symptoms have increased and I am continuing on the lowest dose of Levadopa.

A friend of mine who has had PD for 12 years had almost lost her voice with the disease, making telephone calls very difficult. Recently she has taken voice training and now has fully recovered her pre PD voice.

[Jmellano]

How I wish I could exercise. My fatigue is so debilitating. I wake up exhausted every day even after a decent nites sleep. And I used to be an athlete and trained every day prior to diagnosis. This disease is so insidiouus . One of its symptoms (fatigue) prevents one from doing the very thing (exercise) that can help slow progression and/or ease symptoms

[Jana86]

I exercised faithfully for the first seven years and can attest it is the one and only way to reduce symptoms. At ten years, a lot has changed. I have insomnia, difficulty absorbing levadopa, and intense neck and back pain result from any exertion. My life has been taken over by managing this disease. I have bilateral tremor that can leave me helpless for hours when the meds fail. My weight dropped by 20 pounds when food and Levadopa began to be mutually exclusive (not weight I needed to lose). My lack of intense exercise has nothing to do with motivation or ignorance. I walk, garden, and do yoga but know very well it is not enough. I have begun exploring DBS, FUS, PTT options...to see if one might offer sufficient relief to allow me to resume a higher level of exercise. I am 75 and have other health issues as well. Perhaps you should add another box to your chart labeled people with advancing age and complex medical issues?