feeling alone

[uvmmom05]

i am feeling so alone as not able to be as active as I used to be. My legs are so always stiff and cramping, Any suggestions



[LindaP50]

Sorry you feel so alone.

Do you get up and walk around at all to get your blood circulating and muscles moving? Cramping could be from lack of water.

Have you spoken to your primary care doctor?

Drink some water. Massage your legs. Get up and move around a bit.

Tell us more ....

[uvmmom05 in reply to LindaP50]

i only drink water and I get up and move around using every to get up. I also go and walk outside a little

[pvw2]

Your symptoms sound like you need magnesium.

[laglag]

Try Rock Steady Boxing. I've been going for 16 yrs & it's helped me more than anything! I don't feel alone because everyone has PD and everyone knows how you feel. The exercises help your whole body and they have classes for every level.

rocksteadyboxing.org

Read the testimonials and find one that says " by Debbie " and that will be my testimonial I wrote about 12 yrs ago.

Keep fighting! 🥊

[Jmellano in reply to laglag]

rock steady boxing; camaraderie is amazing, nothing like being with others that know what u r going through..slippedawayblog.wordpress.c...

[HekateMoon in reply to laglag]

do they do online classes?

[laglag in reply to HekateMoon]

They do have some called rock steady r o x program. They recorded these for covid. But it's better when you are there. Check out this you tube video and then you will see others. I believe there are at least 20 videos. You can go to their website and see if there are online classes.

youtu.be/5rqzV8hjI8Y(Not working as expected?)

🥊

rocksteadyboxing.org

[uvmmom05 in reply to laglag]

thank you

[HekateMoon in reply to laglag]

thanx lalglag. Difficult to find much classes in my world. De one and only in ireland is 2 hrs away from me. Too much. Ill check online. My motivation is decreasing these days...

[laglag in reply to HekateMoon]

Do you take any supplements?

[uvmmom05 in reply to laglag]

i am on 50000 units of vitamin d and B12. 1000 units per day and then a shot of B12 once a month.

[park_bear]

What is your medication regimen?

[uvmmom05 in reply to park_bear]

,carbo/levo, lamictal, levothyroxine and Seroquel, vit d and B12 injections

[park_bear in reply to uvmmom05]

Stiff cramping legs can be a result of too little or too much carbidopa levodopa. How much are you taking and how often? What is the timing of the stiff legs in relation to when you take this medication?

[uvmmom05 in reply to park_bear]

carbo/levo 50-250 at 6,. 12,. 4, and

[park_bear in reply to uvmmom05]

When you take your first dose at 6 AM are the stiff cramping legs at their best or at their worst?

[uvmmom05 in reply to park_bear]

worst. Gets a little better by

[park_bear in reply to uvmmom05]

Consider adding magnesium to your supplement regimen or using magnesium chloride spray

[uvmmom05 in reply to park_bear]

i have some in my vits. Spray?

[park_bear in reply to uvmmom05]

Magnesium chloride dissolved in water and sprayed on the affected areas.

[uvmmom05 in reply to park_bear]

thx

[chartist in reply to uvmmom05]

Here is a typical magnesium chloride oil spray (mag oil) :

amazon.com/Magnesium-Oil-Sp...

It can usually stop muscle cramping in about a minute and can also be used to help temporarily relieve arthritic joint pain. If it helps you, you can then consider making your own for less cost as park_bear mentioned. Just spray it on lightly and rub it into problem muscles that are cramping.

Here is a link to more info on mag oil :

healthunlocked.com/cure-par...

Art

[Thomas707 in reply to uvmmom05]

Hi, are you taking Thiamine? Also how do you even function taking Seroquel thats a very sedating Antipshychotic thats prescribe for sleep I couldnt get out bed taking that

[uvmmom05 in reply to Thomas707]

i take it at bedtime

[Bolt_Upright]

If you are not joining the Zoom Calls Marc is hosting, please do! You will be less alone at twice a week, and may get some advice:

us02web.zoom.us/j/833522248...

Saturdays, 7 PM – 8 PM-ish, US Central Daylight Time (GMT–6.)

Sundays, 11 am – 12 PM-ish, US CDT.

[uvmmom05 in reply to Bolt_Upright]

thx

[LindaP50 in reply to Bolt_Upright]

Excellent idea!

[PD10123 in reply to Bolt_Upright]

Does Marc have a webpage?

[Nivrac77--]

Emergen-C powdered drink mix can help the cramping and stiffness, especially helpful if you get “at bed-time, or just before” leg issues. I’ve also used (and still do, while recovering from a total knee replacement), Theraworx on my calves to stop cramping. I assure you you aren’t the only one suffering with leg issues among the various Parkinson’s symptoms. Keep the faith and hang in there.

[uvmmom05 in reply to Nivrac77--]

thanks for your

[Marcia123]

I feel the same way. I often get pushed around in a wheelchair and no one really wants to go out for dinner with you yeah it is a rare friend who will offer to take me out so you have to go on your own.

[Godiv]

Hey there. I’m so glad you said hello. And yes it can be very isolating. But hopefully, not as much now :-).

[uvmmom05 in reply to Godiv]

still is somewhat lonely but I have a loving husband who is always there for me. I just don't want to get sick.

[Godiv in reply to uvmmom05]

I think I know what you mean. There’s physical loneliness and then the loneliness of having this stupid disease. Kind of a double dip. But it’s really nice that your hubby is there for you. These situations can really make amazing people even more amazing.

[HekateMoon]

hi uvmmom. We are far away but u are not alone. I also feel lonely sometimes. Life gets limited by pain. If you feel like talking send a dm. All the other strategies.people offer are great too. Sometimes all we need is to ven a bit about how hard it all is. Here we are.🙏

[uvmmom05 in reply to HekateMoon]

thank you for reaching out. I try to keep my mind occupied by watching game shows and food shows. What do you do?

[HekateMoon in reply to uvmmom05]

i love reading, i look for herbs, remedies healthy food etc. Im healing my dog that has cancer, i meditate. Take two 25 min walk and if i have energy i putbi music and dance a bit...

[uvmmom05 in reply to HekateMoon]

i love music. It helps to calm me. Saturday morning I watch CMT country country countdown videos

[HekateMoon in reply to uvmmom05]

there is a guy who teaches a method for parkys...one strts with something classical and pretending to conduct and orchestra...let the emotion build up and bit by bit increases the rythm. It help me when im really passive and stuck.

[uvmmom05 in reply to HekateMoon]

sounds interesting

[HekateMoon in reply to uvmmom05]

it starts moving you slowly so if movement is impaired this helps..it connects emotions to the body so yes. Its very intersting

[uvmmom05]

this sounds like something I would like to try. I try anything to do with stretching my leg muscles.

[SAGoodman]

 I also suffer from stiffness on my right side. I use an Oculus 2 virtual reality set, and do less Mill's body combat. It's very similar to the boxing that they do, but I can do it at my home or at hotels as I travel. That may be an option to help

[laglag]

You are not alone. You have had a lot of people respond to you. 🥊😊🙏

[uvmmom05 in reply to laglag]

i am thankful for that

[beehive23]

you can fb me..ill msg u. hang tough....

[uvmmom05 in reply to beehive23]

tried to Fb you but couldn't

[uvmmom05]

thank you

[beehive23 in reply to uvmmom05]

how are you?'

[uvmmom05]

i am ok. Taking one hour at a time

[SilentEchoes]

I bought an electric wheelchair so I can keep up instead of holding others back. It's ultra light weight and folds up like a stroller, it fits in a trunk. Not ready for a wheelchair full time. I think it will do wonders for my loneliness. I think any mobility aid will benefit you. ❤️

SE

Collapsible electric wheelchair

[uvmmom05 in reply to SilentEchoes]

good

[laglag in reply to SilentEchoes]

where did you buy it? Is it expensive? My Dad could use one. Good luck with yours!

[SilentEchoes in reply to laglag]

I got mine from Craigslist. Just search electric wheelchair. There are some on Amazon too. Good luck!