HDT & TTFD–In my case, HBP was a return of symptoms and not a side-effect of TTFD.

[Gcf51]

Email sent a friend (slightly edited):

The more I read, the more I realize, I don’t understand Parkinson’s—Could my blood pressure problems (heart pounding, rapid beat, high pressure, etc.) be from Parkinson’s? apdaparkinson.org/article/h... I quit with TTFD because of High Blood Pressure (BP), during a period of reducing my dose (return of symptoms). My doctor has made two changes to my medication for HBP. I recently realized that I was having off-periods before taking my second dose of Carbidopa/Levodopa (C/L) where my BP was high. I changed to taking 1-1/2 (3) times a day from 2-1/2 (2) times a day and it has helped tremendously. It is possible (don’t know how likely), that my HP is due to failure of the autonomic nervous system caused by Parkinson’s (PD) and my unstable fluctuating high blood pressure is a symptom of PD and not caused by the TTFD. And, my extremely high BP was panic attacks (I thought I was going to Die). I was having BP problems before taking TTFD (I had been trying to get my GP to increase my BP meds for over a year) and since C/L helps my BP, BP problems must be due to Parkinson’s.Do I try TTFD again? Knowing now what I didn’t know then. If I do try again it will be at dose before problem occurred (1/3 cap).

Her Reply:

Given the excellent results you had from the TTFD the first time, I think it might be worth another try.

(8/22/22) Day 5 (my attempt at 25) of my homemade 1/2 cap made from 50mg cap of TTFD and after a month of Hell—I feel great, BP has stabilized. Still have a little Tremor—I am not back to day 3 of starting TTFD, which was probably Placebo. I never associate my BP with my PD. healthunlocked.com/cure-par...

[wifeofparky]

PD is a progressive disease and has a lot of non-motor symptoms. Try going to Parkinson.org and check out the informational resources they have. They are free and VERY helpful.

[Gcf51]

B1 as TTFD, I know of one person taking 150mg a day, one taking a 3rd of 50 every 2 to 3 days and a lot that say it made them feel terrible. I believe, I might end up with more than half of 50. Energy level is high!!! 3 days of 4-1/2 hours sleep and last night 6-1/2.... Sleep headed in right direction...

Given my experience with TTFD and having to take less, I would not recommend buying the 100mg caps. There are products sold in Japan with smaller doses, but all I have found are loaded with extra vitamins. I even purchased, Elliot Overton’s document “Protocols for addressing thiamine deficiency & the paradoxical reaction” in hopes of finding a solution to my BP—A waste of money for me, there was nothing in it that helped my BP.

[Gioc in reply to Gcf51]

Hi Gcf, You're learning a lot of things and so are we. Thanks.

Greetings from Italy

Gio

My home

[ddmagee1 in reply to Gioc]

Gioc, Your Italian home, and view, is wonderful, and looks so peaceful! I’ll bet it’s great to just relax on the deck, and soak up the sun! Viva Itália!

[Gioc in reply to ddmagee1]

Ciao ddmagee,

I always read your posts with pleasure, they are of inspiration for me because they concern lived Life and therefore the most fundamental Truth, i.e. the human being in his Spiritual Essence.

You!

"Artistic photography" is more a dream than reality; it conveys feelings and that is the purpose for which it is created.

The participation of the observer is an active integral part of the work of Art.

The motto is always "make your life a work of art, beautiful and interesting for you and for others".

I know, it's not easy with these diseases.

This requires a strong intention and great skill that only a professional of living like you can have.

Thank you very much.

Greetings from Italy .

Gio

[ddmagee1 in reply to Gioc]

As an artistic person myself, I appreciate your comments! Thanks!!

[dadcor]

Welcome again. Just do not rush to overdose 🙂

[LAJ12345]

It’s worth considering if you are taking something that is supposed to make you better whether symptoms are due to you becoming over medicated when you do improve.

[Stillstandingstill]

Thank you for sharing your experiences. Take care.

[ddmagee1]

My neurologist thought my symptoms of rapid heart beat, blood pressure fluctuations, etc. are due to autonomic system irregularities, affected by PD, so he put me on Losartan and Propanolol, and, sure enough, that solved my problems! Of course, we are all different, in terms of how this “snowflake” disease affects us. So, my recommendation is that you discuss your symptoms with your movement disorders specialist/neurologist, and ask if it could be a PD related autonomic dysfunction, for you, and what they would recommend! Good luck!