Dealing with off times plus positive thoughts on neuroplasticity and BDNF

[Seamus6]

Recent video with a great Neurologist and with a pwp doing well ten years in.

All good but I found the last ten minutes particularly interesting - as ever exercise and keeping the brain occupied are key.

(Courtesy of Davis Phinney Foundation)

youtu.be/Mub4po5WjoQ(Not working as expected?)

[kaypeeoh]

Great video. I wish it had been longer. The concept of 'off times' is difficult for me to accept. I realize when I'm having double vision that the Rytary is wearing off. I didn't know that cognitive problems were occurring at the same time.

I had an appointment a few days ago. A nurse led me from the waiting room down labyrinthine hallways to the exam room. When we were done she opened the door shooing me out and I had to find my way back the the waiting room where my wife was. I was lost in a hallway unsure what to do. Nearly in a panic I hugged the wall for a moment as a nurse walked up.

She lead me back to the waiting room. Then with my wife driving us home I realized that if I'd been driving I might have crashed because the double vision had me seeing cars in both lanes coming at me.

But it tells me I can drive safely as long as the Rytary doesn't wear off. I suppose in a car I could keep one eye closed. But I drive a motorbike where both hands have to be on the handlebars. Maybe tape one eye closed before getting on the bike?

[Hikoi in reply to kaypeeoh]

I wouldn’t drive during off periods. If I hurt someone or caused an accident, well it would be hard to come to terms with that.

[kaypeeoh in reply to Hikoi]

That's why I don't argue with my wife about her keeping the keys. But I'll bring this up at the next PD recheck.

[gginto in reply to kaypeeoh]

why does the double vision happen? does it originate from the brain or is there something in the eye that's changed??

[kaypeeoh in reply to gginto]

In my case it's a lack of convergence. The eyes each see different things and can't converge into one view. I would drive with one eye closed.

[Gymsack]

Kaypeeoh, Read your own post again and tell me what caused the panic attack and why you think somebody needed to walk you back like a child then you are going to Tape one eye shut and you are still confident that you can drive a motorcycle . Please give a lot of consideration before you make decisions. Maybe just do not make any decisions, that will eliminate a lot of stress.

Sell the bike or give it away, face reality, do the smart thing and stop driving. I have not driven in 10 years and I hate it and all the other Parkys that gave up driving hate it also. A complete lack of freedom. Life is irrevocably changed . I have to ask my wife to take me everywhere or call a taxi. But what are you going to do if you are going the wrong way on a one way street and you get a panic attack or your tape falls off and you see double or just not have the reflex speed and you kill a child ?

The decision is not about you, its about the child. I know what you are going through but You need to admit and face your problem, and then you avoid the consequences of ignoring it.