Rytary

[lmtwa]

Rytary for Highlander63

My experience - PDx 6 years ago - tried a lot of different combinations - always a problem. Changed to rytary 2 - 4x/day plus rasagaline - Like night and day. Exercise is a must - My vote is Rytary

Lloyd

[Isthistheone]

My CL has lost some of its kick. Can you tell me the Rytary dosage amounts and your dosing schedule. Please include the Rasageline. How long before you showed improvement. Any change in your sleep? When anyone says the difference between night and day - you get my attention.

Thanks for sharing.

[lmtwa in reply to Isthistheone]

night and day would not be an overstatement - It took about 2 weeks to notice any difference (as I remember) maybe less/

Rytary 36.35 mg/145 mg 2 caps 4 times a day.

Rasagaline 1mg 1x - plus exercise - do you know about Rock Steady boxing? They have groups all over - we are in Orlando 2 x live -

Exercise is a must

[Isthistheone in reply to lmtwa]

Thanks for your response. I used to attend Rock Steady Boxing. My balance became so poor I had to stop. I agree, frequent daily exercise is essential.

[JAS9]

I agree completely. PDx 13years. 6 years ago I was really struggling and nothing was working for me. Rytary has basically given me another 6+ years of fairly responsive meds. Also agree about exercise!

[Tmarsella]

What strength is your RYTARY. I do 195 early am then 145 x 3 plus Mucuna and other supplements. Male age 81 diagnosed 4 yrs. Fresno,CA.

[parkylot]

Just came from Neurologist. We agreed to double my dosage of Rytary from one 36.5/145 twice a day to one four times daily.

It’s good for 31/2 to 4 hrs but my day’s can often be 12-16 hrs long.

I also take 1 mg Rasagaline.

Agree night and day difference to c/l.

[Ponieboy]

I take Rytary 195 and 145 3x a day haven't noticed any real reduction in my tremors nor have my tremors gotten any worse. I was diagnosed 2 years ago. Walk 2-3 times a week 3 miles on average per walk. Hard for me to guage any difference. I find meditation helps stop the tremors for a short time. Will be looking into yoga and some alternative therapies to help also for exercise.

[lmtwa in reply to Ponieboy]

Interesting - as you know, each person with PD is different - I would not even attempt a suggestion - probably your neuro can offer some suggestions? Also, does he/she se Rytary on a lot of patients?

[Ponieboy in reply to lmtwa]

I have an appointment next month. So we will see whats next...