I am a young onset non tremor dominant PWP,in my fifties, on Rytary and I have reached the stage where my medication does not work well like before anymore, a stage where it has become very unpredictable, whether I will get "off" period or dyskinesia, unless I increase my medication dosage. However, this means more dyskinesia. So, if you are a non tremor dominant PWP and have had Deep brain stimulation done, please respond.
My cogent questions to you are :
1) When did you get your DBS and what equipment did you get?
2)How long did it take for tunning to get the right setting?
3)What trade offs did you, or are you experiencing ? Examples, speech, balance, personality changes, mood swing, increase sleeplessness, numbness of extremities, stroke.
4) Are you still on medication? If so,any reduction?
5)If you live in the USA, where did you get your DBS done?
I will very much appreciate your reply.