How I beat Parkinson’s : My T cell... - Cure Parkinson's

Cure Parkinson's

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How I beat Parkinson’s

21 Replies

My T cell lymphoma.

PTCL is potentially curable with chemotherapy. The median progression free survival (PFS) following CHOP chemotherapy is 12 to 14 months. Approximately 20 to 30% of patients will be alive, and disease free, 5 years after the completion of treatment.

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21 Replies
park_bear profile image
park_bear

Kudos for maintaining your sense of humor!

Jennyjenny2 profile image
Jennyjenny2

Keep soldiering on, Roy.

I’m confident to say that if you had a 20-30% chance of winning the lottery, you’d buy a ticket as there’s a good chance of winning!

Gioc profile image
Gioc

👍

Kattripp profile image
Kattripp

Something tells me that you will be in that disease free group!

MBAnderson profile image
MBAnderson

We are all rooting for you.

Bolt_Upright profile image
Bolt_Upright

Good luck Roy. Praying for you.

Giovi1960 profile image
Giovi1960

👍

NellieKane profile image
NellieKane

Prayers for you

NRyan profile image
NRyan

Tough news, I'm sorry to hear it. We are 7x more likely to get cancer....but stats are just numbers until it hits home. It will be how many of us beat Parkinson's. Thoughts and prayers from all at HU. 🙏. Big hug.

in reply to NRyan

May I ask from where you heard that we are 7x more likely to get cancer? Is that a well known statistic? I was unaware.

in reply to

I don’t know 7x . T cell is my fourth. One T cell and 3 basal cell. I have read higher incidence.

in reply to

My Dad with PD has had skin cancer multiple times. He fought it, beat it, and is still here with PD.

justhavefun2 profile image
justhavefun2 in reply to

When I first started taking C/L my neurologist had me go to a dermatologist for a check up. He said that by taking the medication and increase your chances for skin cancer. Thanks for the reminder! I should make an appointment with my dermatologist again. It’s not one thing it’s another!

Have you heard Roy how cancer loves sugar? A no/low sugar diet helps starve the cancer from what I’ve been reading

bassofspades profile image
bassofspades

Looking forward to seeing you being disease free! Good luck my brother.

GymBag profile image
GymBag

Humor, laughter, enjoyment, love, peace, rest and then more laughter, memory of things past and then a plan to facilitate the same for tomorrow. Involve family and friends and go where you want and do what you want now , do not wait until you feel better. Six days, six months , six years, sixty years , none of us know, it could be six minutes from now. Make the best of it for the rest of your life.

You can do this Roy. (laughter is the best medicine)

PS I liked the picture of you and the shiny shirt

Isthistheone profile image
Isthistheone

Roy you are a smart person, always have been IMO. YOU HAVE A VERY POSITIVE PERSONALITY. Hang in there Roy as long as you can. The smartest most dedicated researchers are closing in. You are a warrior my friend! God bless.

ParlePark profile image
ParlePark

👍

Despe profile image
Despe

Roy, you have almost beaten PD, you can do the same to your TCL! Keep fighting like everyone else on this forum. We all need courage and strength to face our challenges.

Godiv profile image
Godiv

Hang in there Roy! You got this. And we’re all here for you. I know we can’t fix each other on this forum, but we’re at least here to listen and support. You have done so much on this forum and are such a mainstay with kind counsel and advice. I look forward to hearing your thoughts for many years to come. And learning from your wisdom.

Smittybear7 profile image
Smittybear7

Prayers coming for complete recovery.

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