Parkinsons: How can I help a friend with... - Cure Parkinson's

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Parkinsons

dad4u47 profile image
14 Replies

How can I help a friend with Parkinson's disease

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dad4u47
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14 Replies

"Parkinson's disease" Vitamin B1 use instructions : Join my Facebook group Parkinson’s thiamine hcl m.facebook.com/groups/23226...

Allypally49 profile image
Allypally49

reassure them whatever you hear, you do not die from Parkinson's.

Tell your friend to check out:

"Things you can do to improve your Parkinson's experience."

healthunlocked.com/cure-par...

MBAnderson profile image
MBAnderson

In addition to Roy's suggestion, which is a good one, you and your friend spend some of your spare time reading this forum.

laglag profile image
laglag

Listen to how they feel and try to understand. Don't try to push them to do anything but just encourage them. Have them try Rock Steady Boxing. It's non-contact boxing and other exercises that are just for people with Parkinson's (PWP's ).

rocksteadyboxing.org

There are over 800 affiliates all over the world.

GymBag profile image
GymBag

I have a friend who I have known for 62 years. He telephones to tell me he is coming over . If I tell him that I am not having a good day, he comes anyway. Pre Covid we would go out for coffee but now we meet in the back yard and have coffee here.

We talk. and when he leaves , I feel better. Thats all , It means the world to me

Reginald1 profile image
Reginald1

Just by being there as a friend and learning as much as you can about Parkinsons so you can discuss it with him from a knowledgeable position.

ddmagee1 profile image
ddmagee1

All of the commentary here seems to be just the right advice, to help someone, who has been diagnosed, with PD! Thanks to all who contribute to this forum! Personally. I would recommend reading and participating in this HealthUnlocked Cure Parkinson’s forum, to all people who need help and tips, for daily living, with PD! It is a good support network for people who have been diagnosed, with Parkinson’s, and, perhaps, also, for those who wish to help people, who live with Parkinson’s, coping with it’s chronic nature, every day!

LAJ12345 profile image
LAJ12345

Go for walks or other exercise with them and keep them company and watch out for signs of depression and anxiety. Keep their mind on other interests and activity so they don’t obsess about it and don’t focus on it too much especially if they are early stages. Diet is really important so if they will take advice try and get them to eat an ultra healthy diet and avoid additives. Lots of posts on here on diet.

JohnPepper profile image
JohnPepper

Hi. My name is John Pepper. You can Google me to check. I was Diagnosed with Pd in 1992. In 2002 I no longer needed to take any further medication and am still Pd-medication-free at age 86.

If your friend is prepared to learn how to do fast walking, as I am still doing, he/she can possibly reverse many of the movement symptoms and live a normal life again. It costs nothing to walk, so even if it does not work he/she will be a lot healthier.

Let me know and I will send you all the information, free of charge.

sue2000web profile image
sue2000web

I’ll second the B1 protocol and it works brilliantly for me, 9 years on and better than ever

ConnieD profile image
ConnieD in reply tosue2000web

What dosage do you take?

Berylhorsey1 profile image
Berylhorsey1 in reply toConnieD

I take 2000mg in capsule form with one magnesium tablet. Please try them as they have turned my life around. I checked first with my gp and pd nurse, I know they will not say the B1 will make a difference, but they both confirmed that the tablets would do me no harm, so why not give it a try. I found that over the first six months there was monthly improvement in all my symptoms. and my family and friends say that they would not know I ha pd. my disease is still progressing and i find there is a little detrioration, but so slight that i don't worry about it. good luck. sue

ConnieD profile image
ConnieD

Thank you for this info! Happy to hear it’s helping!

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