parkinsons: my father is 64..... he is... - Cure Parkinson's

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aditya2270 profile image
11 Replies

my father is 64..... he is diagonsed with PD..... what should i do?

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aditya2270
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11 Replies

aditya2270,

A little more information about his situation will help the members make appropriate suggestions for your father!😊

Things like how long ago he was diagnosed, what meds he is taking, what are his current symptoms and what are his worst symptoms would be helpful.

Art

aditya2270 profile image
aditya2270 in reply to

slow movement........ less clarity in speaking...... acidity has increased......infection in nose too..... doctor said that it is the third stage....... everything was fine before winters.....

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aditya2270,

Here is a link to a page that will tell you all about using vitamin B-1 at high dose (HDT) that many of the forum members have found to be very useful for reducing multiple disease symptoms and improving their quality of life very significantly. It does not work for everyone, but it has shown to work for the greater majority of people who have tried it. Post if you have any further questions about it, but the following link should tell you all you need to know :

healthunlocked.com/parkinso...

Art

OTEB profile image
OTEB

Exercise! I highly recommend that he sees a physio or OT trained in PD Warrior or LSVT Big. These are Parkinson’s specific exercise programs that target the specific impairments experienced. And research shows that exercise in the right quantity and intensity can help to slow down disease progression. He may have to do this privately but I think it’s absolutely worth it.

Where abouts in the world are you?

JohnPepper profile image
JohnPepper

Because no Pd medication has been designed to slow down or stop the progression of Pd and they all have serious side effects, you should first look at natural ways of dealing with Pd symptoms.

If you look at my website - reverseparkinsons.net you will find that fast walking can slow down or even reverse the progression of Pd. Contact me on that website and I will send you a whole lot of information, free of charge.

Jumex2017 profile image
Jumex2017 in reply toJohnPepper

My husband has tried fast walking although for only 12.5 minutes every morning . He said it makes him feel much better for the day . He has reached the stage of extending the time yet but I’m hopeful.

Jumex2017 profile image
Jumex2017 in reply toJohnPepper

I mean he has not reached the stage of extending his time yet. So why not give it a try . It’s healthy and definitely no side effects!

condor39 profile image
condor39

My advice to newly diagnosed patients is to find a general practitioner and a neurologist, and to follow their advice. They are the medical professionals. If you prefer to follow the medical amateurs, there are many who will offer an array of unproven remedies, often with unknown side effects .

With a condition like Parkinson’s the symptoms vary from person to person and from time to time. Those with mild symptoms, or improving symptoms, will often attribute their improvement to the latest fad they were following. A sincere belief, however fervently held, is not proof.

campos1004 profile image
campos1004

i heard boxing is s huge benefit in pd

4000Nights profile image
4000Nights

PD is like snowflakes... no two cases are exactly the same, but I would advise four things:

1) First of all, the world did not end. If past 60, he probably has had it for years and, even without meds, it may be a very slow progressing case. My diagnosis with Parkinson's Disease in September 2013 at age 70 gave my life a new focus and challenge. Finding ways to meet this challenge helped make the last six years some of the best year of my life.

So don’t assume the worse.

2) GP doctors are for the most part clueless. If, you haven’t, get him to a neurologist who really knows PD and try whatever they recommend until together you find what works for you.

3) EXERCISE IS BY FAR THE BEST MEDICINE so get him up and start walking, use hand weights, shadow boxing is great. You do what you can this week and next week you do more. I am in better shape and look better, so I have been told, than I was before I was diagnosed. Bottom line: GET HIM MOVING!

4) Lastly.... you need to understand (and your Doctor needs to too) that there are meds that treat the symptoms and there are others that treat the cause. Carbidopa-Levodopa three times a day works for me to significantly reduce my symptoms. But I also take Azilect because my neurologist (god bless him) believed there was evidence that it substantially slows progression in some patients. Recent studies have supported that, but it varies by snowflake. BUT it apparently has worked well for me. I have seen blogs where PD’ers have stopped taking it because it didn’t help their symptoms only to find their symptoms got worse. My recommendation if you are recently diagnosed and are early stage is get on Azilect (generic Rasagiline)! It is not terrific at treating symptoms, but it very well may significantly slow your progression.

Perhaps I am just one of the more fortunate PD’ers. I am only stage 1.5 and, more significantly, I have remained there for over five plus years. I am 75... I still work... I walk everywhere. A couple years ago, I ocean kayaked in the Sea of Cortez... something I would not have done before I was diagnosed.

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