What happened to B1 gofundme?

gofundme.com/f/high-dose-th...

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Marco responds:

Hi Roy, the campaign is still active, unfortunately we did not get donations for some time now but we are still working to get funds from funding institutions like the MJFF and others to add to the campaign. Unfortunately with the MJFF we had a hard reality check and we are trying to find alternatives because it seems they are not interested in funding HDT research.

If anyone of the members has other ideas about foundations and institutions that have open calls for proposals on research applied to PD please do let us know, we would definitely apply. Since Dr Costantini passing we had some really difficult times but we are not giving up on this of course. It’s been difficult though on so many levels, personal as well as professional. No help from anyone ever, and actually we have also been made fun of in some cases by those who were supposed to give us a chance.

[Art_lover45 in reply to Hidden]

I got very excited when I read about Dr. Constantini's research on Thiamine. I had discounted thiamine when it was first suggested to me by Robert Redfern - the Serrapeptase guy - as something I should be taking as a newly diagnosed pwp. I felt that I was already taking too much stuff as well as the levdopa / sinemet until I read Dr. Costantini website.I have asked my Parkinsons nurse to sniff this out as my Neurologist poo poos what he cannot prove in a lab. I only see the nurse every six months and the dr. (if I am lucky) once a year! They are completely bogged down with Covid. However. Recently I have had the opportunity to visit an eye clinic (cancelled last year in March) and I see my P D nurse and can telephone her any time I like. (takes 24 hours for a call back). I have read everything I can get my hands on about Dr. Constantini's research, God knows I cried when I read he had diedl The Maxilla Facial clinic are also very kind and helpful re PD and salivary problems. I had Botox treatment but it did not help. So! self help. Gingko Biloba 120 mgs twice a day, Vit. B1 after breakfast Curcumin x 2 and Ubiquinol (Coenzyme Q10) This i s none of it cheap but I can honestly say I feel better now four years in than I did before diagnosis.

I have no noticeable tremors, I walk well and no longer stoop. I do stretching exercises for my back and shoulders (5 of each twice a day) and because of the Serrapeptase (2500 ius twice a day) I am relatively pain free. My speech bothers me more than people listening to me and the saliva problems bother me at night. So I would suggest you do the vit B1 thing yourself and the Ubiquinol seems to release energy - but everybody's different, Good luck!