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LDN & PD

ccr69 profile image
8 Replies

LDN and PD. Has anyone had success with using Low Dose Naltrexone for PD?

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ccr69 profile image
ccr69
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8 Replies
movinngroovin profile image
movinngroovin

I have us d it for 20 years. It seems to slow down the progression. Book called Good Medicine is great!

Godiv profile image
Godiv in reply tomovinngroovin

Movin, who is the author of the book you like? Thanks! It sounds interesting ....

movinngroovin1 profile image
movinngroovin1 in reply toGodiv

I can’t recall. It was a female So sorry

Godiv profile image
Godiv in reply tomovinngroovin1

That's okay. No worries!

parkie13 profile image
parkie13

I have been on it for at least six years. I believe it helps with the way you feel both physically and mentally. I make my own. I dissolve a Naltrexone 50 mg tablet in 50 mL of water and I take 3 ml a day using a plastic syringe squirting it into my mouth. Otherwise, you'll be paying $30 a month, at least. I forget to take it once in awhile and I always go back and starts taking it again. You can take it anytime it doesn't have to be just before bed.

ccr69 profile image
ccr69 in reply toparkie13

Thank you for your answer about LDN, I wonder how you get a prescription for the Naltrexone you use to make the diluted version?

parkie13 profile image
parkie13 in reply toccr69

My neurologist at the time would not give me one. I went to my physician and the PA gave me a prescription for it I've been able to refill it ever since then. Also to begin with I contacted a pharmacy in Canada and you don't need a prescription and I got Naltrexone send directly to me from India. I believe it was River Pharmacy.

ForViolet profile image
ForViolet in reply toccr69

Wish I could say how long we've used it but I do know it's been many years. At least since 2000. I was using it for fibromyalgia, and decided to use it for husband too. That was way before we knew he had PD.

We use 3.25 ml after dissolving the pill in 50 ml of water. I store it in the fridge.

Some people had said to stir the mixture and let it settle before using. I tried this and it didn't work at all for us. Now I shake before using like I always did.

My husband can't remember what it does for him. But I know that injuries that used to take me 6+ months to heal now take just days, I'm not PD, but this speaks possibly for it's help w inflammation in general.

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