Some have expressed concern that an online support group would undermine the forum and the comment immediately drew a lot of likes, so I am going to cancel because I do not want to do anything that might divide the group.
Online support group is hereby fini.
Awe Marc, you should know that you can't always please everyone?
You probably disappointed at least 30+ people hoping for a live interaction to get to know each other even better than possible through a forum. You should've at least given it a trial.
Even if a majority wanted to do it, if it is upsetting to a sizable minority, it would be divisive.
It doesn't have to be a dead idea, but I don't feel good about launching off myself without 1st having a robust discussion so all points of view are heard. Maybe some of those who are concerned it would undermine the forum could be persuaded that that would not happen.
I should have raised the idea and then waited for a full discussion to take place. My apology.
No one minds my periodic disagreement with you or Poo (which are occasionally learning opportunities,) but I don't want to do anything that is significantly divisive.
You are over-thinking this. By a lot. It will just be a casual chat. If it's good, people will want another. If it isn't, they won't.
Theres zero risk that your zoom chat compromises the forum. I say this as someone that frequently has to participate in conference calls of all sizes.
If there wae no pandemic, would you hold back from organising a get together for HUPM members in your city even though most of us couldn't make it? Probably not? Well your zoom proposal is a) far more inclusive than that, and b) far less likely to prevent valuable info from being shared on the forum.
Perhaps, but a dozen people immediately liked the position that it would be undermining which means there is substantially more people who agree.
I can imagine somebody making a case that it would enhance the forum.
Perhaps after a full discussion, opinions would congeal one way or the other.
You want a discussion about having a discussion 😂
Ha. No, I am hoping those who are opposed to the idea will come forward and/or articulate why or how they feel it would undermine the forum.
I envisioned it as a resource in addition to the forum -- where people would come back to the forum with more answers and useful information, but I might be wrong and I might be in the minority on that opinion.
I think it’s a great idea as it would hopefully alleviate any unkind responses that pop up every now and then. To actually get to know people on a different level has to be a good thing, even though I sadly wouldn’t be joining the group due to the time frame.
Kudos to you, Marc, for endeavoring to get this up and running. Whether it comes off or not, it shows what a lovely human being you are!
Agree:
>Theres zero risk that your zoom chat compromises the forum.
This forum serves several functions, among them:
The posting of research results which will remain unchanged.
Emotional support - if some of that also occurs on an online discussion group, no harm done
We all know you mean well Marc. Always a class act. ; )
Upsetting to a minority
man I am getting tired of that
tell them to go knock down a statue
Holding back the future . They probably are afraid of not looking good, maybe a bad hair day . Maybe unfair to people with pimples. Does every thing have to be approved by every one ? too bad.
With this prevailing attitude. Would the railroad extend across America. Would any one drive a car. Would anything ever have been accomplished ?
Hear hear!
Every day is a bad hair day for me since PD set in. In fact, every day I look in the mirror and don't recognise the woman I see, but I wasn't going to let that stop me joining in.
Ok, you first. Up San Juan Hill, Charge! Ambition for ambition's sake got us global warming and genocides courtesy of the endlessly conquering warlike Europeans and their cultural descendents (which sounds redundant now that I see it in text). Solution in search of a problem. Minority, you heard, you are to shut up.
This sounds like a unique opportunity, especially for those that are socially isolated, think how beneficial that could be, even to the point of possibly saving a life? Maybe too dramatic, but I see so many posts of people who are miserable, afraid and alone. This could be a chance to give them some social interaction and a happy in their day.
What a shame! Nothing ventured etc. Marc it was a great idea. Let's give it a go x
Have you considered safeguarding issues?
Hello Marc,
The zoom support group was a great idea and should have gone ahead anyway irrespective of the number of likes in the other thread. But since that seems to bothers you... I suggest you should still go ahead with it.... BUT set it up so that it compliments HU (ie with no overlaps, but only doing what HU cannot accomplish)
For instance the zoom group can be a "one issue group". An example... Because HU is a text format forum that allows anonymous members, many members currently have social anxiety as a big problem and are trying to solve it without yet wanting to dive into the deep end of socially meeting people face-to-face like they used to do when they were younger 😀
Zoom based social support group could provide the midway solution.
All other issues about medications, symptoms... could either be excluded, banned or only discussed in a light-mannered discussions
Hope this tweak would help revive it
It ain't broke, so why fix it? My herding dog has the same problem ever since she lost her flock. Much happier now she has grandkids to herd.
ha
I decided to join, even though I might of mostly listened, because I see really no downside as long as no one minds a quiet listener type. Maybe some, intimidated by the format, can feel comfort in knowing that you could take part by just listening.
Niagen. Does anybody take this?
So called support
Can NOW's Dopa Mucuna substitute for Carb/Levo 25-100MG-100MG Tab? Concerned about Sinemet's future effects ...
Support groups
