Getting off Sinimet

[evelyn05]

Has anyone gotten OFF of Sinimet without going on another Parkinson med? If so, what were your withdrawal symptoms?

[park_bear]

I did adjust my daily dose downward from a total of 600 mg of levodopa, via Sinemet, to 200 mg as a result of a sudden improvement, without any adverse effect. I would definitely NOT recommend anyone to try this if they still needed it.

[ParlePark in reply to park_bear]

What do you attribute your sudden improvement to? But congratulations!

[park_bear in reply to ParlePark]

Thanks! That was three years ago. The tremor that was so bothersome at that time improved greatly and that improvement has been maintained. However, I do struggle with motor impairment. What I did is not for everybody. I tell the story here:

healthunlocked.com/parkinso...

[ParlePark in reply to park_bear]

Thanks PB! Pre Covid. I was going to start a local class where I was Performing core classes. Oh well. You tube an option!

[evelyn05 in reply to park_bear]

Your story about Qigong was fascinating. My husband (Shazam) is doing the "recovery" program with Howard Shifke which includes Qigong Movement. He was taking Sinimet 25/100 4 times a day and took himself off after a 2 week period. Result was a frozen body - no tremors, just difficulty moving muscles. ( Note he never had tremors after 5 years with PD). He has decided to go back on meds and continue Qigong/recovery program with Howard. Thanks for your reply..

[park_bear in reply to evelyn05]

In the future I definitely recommend that he make any changes gradually.

[2bats]

I came off Ropinirole and Sinemet for a year with reasonable success, but got tired of constant tremor and went back to half the dosage. I think going on a Keto Diet and for over a year now Carnivore Diet enabled the reduction in medication. If you are coming off the meds make sure to taper to zero over at least a fortnight. Good Luck! Best regards, Phil 2bats

[Grumpy77 in reply to 2bats]

Hello phil

Why did you decide to (temporarily) come off ropinirole and sinemet? Side effects i guess? If so, how bad was the side effects? did your reduced dose help you get the right balance between primary PD symptoms and meds side effects? Thank you

[2bats in reply to Grumpy77]

I wanted to see if I could treat the PD with Keto Diet alone, which helped a great deal. I am convinced that a high fat + low or very low carb improves health in a multitude of ways. Current official dietary recommendations are actively ruining many peoples lives.

It’s a balancing act to get enough tremor relief and avoid the side effects

[evelyn05 in reply to 2bats]

Thanks...see our reply above. Our doctor highly endorses the diet...a definite help.

[ktbate]

I had DBS last fall and have not been able to get the settings and meds balanced. 1 25/100 - 5 X daily) Even tried Ryrary unsuccessfully. So my doc at Mayo took me off all C/L cold turkey! No withdrawal problems at all. I am now on DBS only. No dyskinesia

but do have som tremor

[ktbate in reply to ktbate]

Cont: This is quite unusual. Don't even try it w/out your doc's guidence, esp. if you don't have DBS.