Mean words

[Seacrab]

PD spouse of the kindest, sweetness fellow. He is experiencing sudden personality changes and aggression, but he does not remember the episodes. Diagnosed 10 years ago, supplements his meds with boxing, stationary cycling, walking, and an Australian based fitness regime. Is his normal? Is it a med side affect?

[MarionP]

Seems that most such cases are associated with sleep disturbances, at least in PD. Other disorders more commonly are associated, can you descibe more fully? Any contact-sport history (especially involving chronic blows or abrupt stops to the head) or mental or "psychomotor" disturbances or siezures history or accidents\head trauma, or anything involving loss of consciousness (or concussion)???

[Seacrab in reply to MarionP]

Thanks Marion .... Most of the episodes could be sleep related.

[rhyspeace12]

My husband developed psychosis, hallucinations and delusions. It was part of his PD. Medication for those things helped him a lot. He wouldn't remember what went on when he was experiencing the psychosis and later when he was sun downing.

[Seacrab in reply to rhyspeace12]

Thank you, I was worried that it could be signs of the beginning of delusional episodes. Will consult with his doc at our next appointment.

[MarionP in reply to rhyspeace12]

Good ideas, yes, very good.

[pvw2]

I don't know. Too much dopamine? Manic state? Sounds like he needs to see the neurologist.

[Seacrab in reply to pvw2]

We have an upcoming appointment. Thank you.

[nedster]

My brother in law also had PD. He was the sweetest man normally, but became angry, delusional and hallucinated at times. Especially at night.

[Seacrab in reply to nedster]

Appreciate your input ... very well could be sleep related

[rhyspeace12 in reply to Seacrab]

My husband's problems at night were related to "sun downing". When dusk came, he started to get confused, and eventually wandered out in the middle of the night and ended up in the emergency room, hypothermic. We solved that problem by giving him melatonin around 4 pm and then at 10.m.

Another time he crawled out the window into our log room. He said he saw me laughing at him when he got trapped in there. It was all in his imagination .He didn't remember the events.

I had to go to the county office to prove that strangers he thought he saw trespassing on our land weren't filing liens against him to take it way. (hallucinating.) The hallucinations can be caused by the carbodopa/levodopa.

[Seacrab in reply to rhyspeace12]

Do you have an online support group you would recommend?

[rhyspeace12 in reply to Seacrab]

This IS the group I always went to. He had an in person support group, and caregivers met on their own at luncheons. It is a good way to find support, but I found this group using the web helped us more.

[Seacrab in reply to rhyspeace12]

OK Thank you again

[nedster in reply to Seacrab]

As another reply mentioned, it could be Sundown Syndrome.

[slapdasch4]

PD spouse,

My brother-in-law has been mean spirited and and insulting to a number of people over the years . The last time I visited him and my sister he accused me of stealing 300 dollars. In this case, I've got to put the blame on the massive amounts of Requip his neurologist has prescribed. I've had my own problems involving anger/meaness issues related to switchovers and dosages of agonists such as Requip and Mirapex. This category of meds, at least to me, has some real Jekyll and Hyde aspects to it.

[Seacrab in reply to slapdasch4]

Ok - good to know. Thank you.

[gwendolinej]

Melatonin certainly helped my husband’s sleep problems.

What happened was that while he was in hospital, he was put on melatonin to help his sleep. They also put him on an antidepressant, Valdoxan. He was very sleepy in the morning. After checking, I discovered that Valdoxan is a melatonin agonist. We dropped the melatonin and he is sleeping well.

He’s also taking Mannitol, which was the big life changer for him mentally. We sourced it here in Australia, if you are interested.

Gwendoline

[Seacrab in reply to gwendolinej]

Ah ... I will look into to this stateside. Currently, my husband takes Klonopin, melatonin and

Lexapro in addition to his PD meds.

[Hikoi]

You may find this pamphlet helpful.

parkinsons.org.uk/sites/def...

[truckingalong]

So sad for you both... this is such a cruel illness ....We have been married for 52 years and the PF is tough for both of us but so much worse for him ...keep strong!

[Seacrab in reply to truckingalong]

Thank you, so far so .... ok.

[Despe]

Seacrab,

IMHO, meds cause more harm than good. Have your husband try MELATONIN.

[Seacrab in reply to Despe]

Thanks Despe ~ Melatonin has proved to be a good addition to his nighttime routine