What contributes to quality of life in Pa... - Cure Parkinson's

Cure Parkinson's

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What contributes to quality of life in Parkinson’s disease

Farooqji
Farooqji

Taking the patient perspective has led to increasing recognition of the importance of depression and other non-motor features in Parkinson’s disease

jnnp.bmj.com/content/91/6/5...

11 Replies

Lithium oratate is helpful. Have you tried High Dose Vitamin B1?

Farooqji
Farooqji in reply to bepo

I had experimented with lithium orotate with apparently no benefit. Have found b1 beneficial but not miraculous

bepo
bepo in reply to Farooqji

What dose did you start with on B1? George started taking 1 gram in the morning and 1 gram Before lunch. The 2nd day he started this therapy, his tremor was completely gone. Then it became worse. We are going to have to lower the dosage until his symptoms are greatly reduced. When the dose before lunch is too much B1, the symptoms get worse. The idea is to take less B1 until the sweet spot is found. That is the dose that is followed for life.

Farooqji
Farooqji in reply to bepo

I have started 500 mg morning and 500 mg evening (1 gram a day). I feel a little better but cannot conclude anything at this stage. As per the existence of forum members, some see immediate results whereas for some it may take months to realize the benefits

bepo
bepo in reply to Farooqji

Chartist said that when George's tremor went completely away after one gram on the second day, that was a good sign. What dose did you start with.

Farooqji
Farooqji in reply to bepo

500 mg morning +500 mg Evening. It has been a week since starting this regime

bepo
bepo in reply to Farooqji

Is there a reason you didn't start higher , like 4 grams? 2 in the am and 2 in the pm. How long have you had PD? When you started at 500, did you immediately notice improvements, if only for a while?

Farooqji
Farooqji in reply to bepo

I am 47 years old diagnosed 3 years ago. Until recently I was as symptoms free as normal person. However I have noticed deterioration since last 6 months or so. I still am able to run at a speed of 12 km/hour. I have started at 1 grams per day due to my age and relatively better condition. Prior to that I have experimented with less doses numerous times without any success.

I have seen some improvement in in anxiety level as immediate outcome but it's early to conclude anything

bepo
bepo in reply to Farooqji

just keep with it. I have some articles on B1, if you would like to see them.

Farooqji
Farooqji in reply to bepo

Yes please share via message

bepo
bepo in reply to Farooqji

Chartist suggested that George double the amount he is taking. He is in perfect health other than his PD. He started taking 300 mg in the morning and 300 afternoon. (Before yesterday, he was taking 150 mg x2. ) His tremor went away for several hours yesterday. It is low to non-existant today. Take higher doses. It does not cause harm.

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