Tremors getting worse immediately after taking HDT break?

[bbc680]

Hi folks, I've only posted once or twice, but I have a question I haven't been able to find an answer to. 62 year old male, diagnosed at 60, but symptomatic long before. Anyway, I've been taking taking 4 grams of B1 daily and Rock Steady 3 times a week. I haven't noticed any progression during that time. I had read that taking a week or two off from Hdt is a good idea, so I stopped a few days ago. I immediately had a large increase in the amplitude of my hand tremor. Has anybody had this happen? From what I've rear it usually takes a couple of months after stopping for condition to degrade? Anybody? TIA

[Hidden]

It takes months to degrade

[stepan13 in reply to Hidden]

Tremor usually starts the next day. In my case

[chartist]

Yes, Dr. Costantini has always maintained that stopping HDT, after many months of use, should not cause a change immediately in symptoms unless their dose is possbly a bit low, but some forum members have stated that they notice a symptom increase if they miss just one dose and others have stated they can go days while others have reported being able to go a week or two, but I can't recall anyone saying they have been able to go for months without B-1 without seeing a loss of benefit. Based on studies, the serum level of B-1 takes time to drop off, so this is puzzling, but there is not evidence for brain content of B-1 to compare with!

Here is a link to the HDT FAQ page :

healthunlocked.com/parkinso...

Refer to Q&A # 58 at the link above for his answer to this question.

Btw, you are the 32nd forum member who has reported a tremor improvement after adding B-1 to their regimen.

Art

[dadcor]

If you feel OK with it, just do not stop it. Listen to your body, no axioma generale here..

[Grumpy77 in reply to dadcor]

Exactly

Maybe it wasn't yet time for you to stop, by the way you didn't state how long were taking the HDT dose before you stopped for a break

Like dadcor mentioned listen to your body... everyone is slightly different both with the dose and the length of time before a break

I have adjusted down to 2g per day and I doubt if I will ever need a break

[bbc680 in reply to Grumpy77]

Ah, Grumpy you are correct, I thought I had mentioned it's been about a year on the 4 grams. I think I'm going to try a couple more days without, as it's not bothering me much hanging out at home and it comes and goes. Thanks for the input everybody!

[KERRINGTON]

I've been on B1 for 2 years, started at 4gms daily, now at 250 mg every other day. During these 2 years I found out that my body responded almost immediately. If I take too much I become jittery/anxious, while too little affects my balance.

[Toogood]

Same.

[jimcaster]

I have taken HDT every day except one day since May, 2018. I'm going with the "If it Ain't Broke, Don't Fix It" philosophy. 😊

[Basih101]

One thing we noticed for sure - when we ran out of B1 my husband became extremely constipated within a couple of days.

[stepan13]

I take 2 grams

[stepan13]

Tremor usually starts the next day. In my case

[bbc680]

Thanks for the replies. This is a great group.