I’ve been taking 2 grams of B1 (Dr. Costantini’s protocol) for a few years now. I was looking for the FB Group to get information about how best to take a break, but it doesn’t seem to exist anymore? I couldn’t find the info on the official website. Does anyone have the details on how to taper off, how long I should be off, etc.?
Thanks.
facebook.com/groups/parkins...
Thanks. This is Daphne’s group, which is different. There was a separate group with a controversial bearded guy as the moderator. That’s where I initially learned about high dose therapy.
There are a lot of people having success with her protocol. It's a continuation of Dr. Costantini’s protocol and approved by Dr. Costantini’s staff.
Yes, but I have five bottles of the Vitacost B1 that I need to work through first.
Read the book. It covers b1HCL and sublingual and injection. Check out the Parkinson’s b1 therapy website and the fb group and utube videos and interviews
That’s not what I’m taking.
My understanding if correct is you have a supply of vitacost b1 to use up. This I believe from the vitacost website is b1HCL which is correct for Daphnes b1 protocol. Let me know if I’m wrong.
Yes, but it’s a high dose and not a low-dose.
hello are you supposed to have b1 hydrochloride every. Mine is also from vitacost
oral b1 must be HCL whereas b1 sublingual/microlingual is mononitrate. Check your labels.
So how is it taken ? The oral HCL everyday ??
I could jut say swallow it but that’s not the answer you need The b1 protocol is not simple and can be challenging but well worth the time because the results can be making. People have success at less than 100mg daily Oral but as high as 4000mg daily with a few. You need to joint the Parkinson’s b1 therapy,fb group and red daphne Bryan’s book from Amazon before you,consider starting the road to success.
Roy’s group?
No not Roy's group
Yes! What happened to that group.
She is using micro-lingual, but indorses HCL in book and on Facebook.
Are you a member of this group? It's Daphne's. Ask the question there
facebook.com/groups/5121199...
I am. I asked but haven’t gotten a response.
In the past my brother W/P just stops them for a break and has started at a lower dose
It's not about Tapering Off, you are supposed to take breaks, for me I do better when I find a lower sweet-spot....
I assumed that I would taper off to take the break (rather than cold turkey)? How long is the break supposed to be? How do I start back up again?
The only side effect of a break is "return of symptoms". I don't have a set break length. I break until return of symptoms and try a smaller lower dose.
Do you stop cold turkey?
If you mean none doing break, YES.
Continue with Mag, B-Complex and any other supplements. That is unless you think a supplement is causing a problem.
Yes, take a break of two weeks but keep taking the Magnesium and the B-Complex, then start again at a lower dose
2 weeks doesn't work for me (on breaks of B1 at a sweet-spot) because I start having "Return of Symptoms" in less than 6 days. For me reducing dose by taking just once a week would not work.
If break is due to OD, take 2 weeks or longer to give B1 time to clear your system.
Following the b1 protocol in daphnes book says. When you experience OD symptoms take a 2 week break ( no tapering off needed). If the symptoms were OD they will subside within the 2 weeks and you can start again on a lower dose. If they DO NOT subside then it was not a b1 OD but quite likely to be the advancement of pd.
Thanks. Just to reiterate, I’m not on the low-dose protocol. I’m not ODing. I just wanted information about taking a break, which I recall was recommended.
Still not sure I understand your question. If you are OD you don’t need to take a b1 break at all. Eventually after a year or more at your sweet spot you may find you need to reduce your b1 dose. Eg after 2 years of success I now take less b1 than when I started and I know Daphne takes much less than when she started. We are all different and react differently. Best wishes
I assume you mean that I don’t need to take a break if I’m *not* ODing? Just to reiterate, I’m not a low-dose therapy. I recall with HDT that a break was recommended…
HDT. does not require a break but if you want to take one go ahead.
If I recalled right, Dr. Costantini indicated take breaks.
Once the patient is stabilized, after three or six months, we usually suggest short breaks of one to two weeks without thiamine. highdosethiamine.org/freque...
My opinion not just one, but forever.
Results keep getting better with time.... I keep trying a lower dose. I seem to have better results at the lower sweet spots. healthunlocked.com/cure-par...
I am currently on Day 2 of a break, my optimum has returned, I plan a couple of more days and plan to restart at a lower dose.
I've found some answers regarding taking a break here:
Oops, sorry. Here is what I'm looking at relating to taking a break:
B1 - a little confused 
Has anyone experienced increased blood pressure from taking B1?
B1 
B1 trial
The B1 thing......
