URINARY URGE.DO YOU EXPERIENCE THIS AS A PWP?

[OREOLU]

Hi everyone,do you or have you experienced the increasing urge to urinate,which can sometimes lead to accidents, especially during off periods? I am 3 1/4 years post diagnosis and on sinemet. I was on Azilect for about six months post diagnosis,before starting on sinemet and I also experience this symptom,during that time.I have complained to my MDS and he didn't do anything about it.He said as long as I am not incontinent. If you have this non motor symptom,how do you deal with this? I know kegel exercise play a role in urinary incontinence,but not sure if this apply to the urge.Please help with your input if there is any alternative way of dealing with this.Any supplements?What have you tried?What works for you? I sure don;t want to start wearing diapers or carry urinals everywhere I go.

[Don_oregon_duck]

I had great urgency problems, I went to a Urologist for answers to my urgency and leakage problem. During the exam he found a build up of scar tissue, from a prior surgery, that was restricting the draining of my bladder. Now when I drip I drip a lot more and the urgency was still there. He had no solution for me. My Acupunturist worked on the urgency problem with limited sucess. Then I switched to briefs (diapers or Depends to some) and my anxiety subsided. I solved the problem with a different solution than I thought I wanted. Actually what I wanted was not to be concerned about urgency. Now I am not concerned at all.

Don

[OREOLU in reply to Don_oregon_duck]

Thanks for your input Don.

[johntPM]

I have this problem.

I found it worse when I was badly constipated - presumably the poo was pressing down on my bladder. Fortunately, I've fixed my constipation now.

Where I have the greatest problem is in the period between deciding to urinate and unzipping my trousers and getting myself in a position to go. I found that wearing loose fitting pants helped. Also, I often test that my "escape route" of getting through the layers of clothing is working before going out.

I also find this scenario is problematic: getting up, taking my drugs, then leaving 20 minutes later, say. Then I find the urge to pee about another 20 minutes later, just as the levodopa is kicking in. Note: this only applies to the first dose of the day. It's as though the levodopa is waking up my system.

Finally, I find that most non-motor symptoms are improved to some degree by levodopa. So, it could be an indicator that I am under-medicated.

John

[AaronS]

I have had this issue on and off, I find the more lax I am with diet, and exercise I slip back and can get a little pre happy

[AaronS in reply to AaronS]

Pre = pee

[JohnPepper]

Yes! I have had this problem for many years. I practice floor muscle contractions, which keeps me a lot safer than before doing them. At least I can hold on until I get to a toilet.

Keeping bodily fit is the answer to many Pd problems. I still manage to do my 7 K walk every second day, other than when sick or have other problems. I have recently had a heart operation, at the age of 85, which lasted five and a half hours. It was in order to do an oblation to the heart and I have now gone back to my normal pulse rate, which had gone crazy over the past two years. I hope that I will soon get back to normal over the next six months.

[Despe in reply to JohnPepper]

Hi John,

I believe I had mentioned to you cardiac ablation, which my husband had 10 years ago and it fixed his arrhythmia. Get well soon and back to your daily routine.

[JohnPepper in reply to Despe]

Thanks Despe. Have a safe and healthy time ahead.

[Routine100]

My wife suffers and has similar problem so don't think you are alone she takes no medication only supplements and maybe this is something to look at. If the medication causes this problem than maybe it is a side effect if supplements give a similar reaction maybe it is for a better reason. I have seen natural remedies for this but we have not tried any the concern it may interfere with the supplements she is taking. The drugs given for PD are very powerful and cause a lot of people that suffer from PD to also suffer additional harmful side effects.

I am being more convinced that PD is more mental than physical be calm relax have a glass of wine talk to a person close to you try to look at the bright side joke around. My wife made me laugh she said one advantage to having PD is using the salt shaker (this is a joke don't be offended). Be well I believe a person can defeat PD.

[ryanJames1]

legmaster.co.uk

I have had symptoms for 7 years no meds I had same problem but invested in this machine and do 30 a day 3/4 times a week I have increased pelvic floor strength and put me back in control

[jeffreyn in reply to ryanJames1]

The website seems to focus exclusively on women. Do you know if the Leg Master has been effective also for men?

[ryanJames1 in reply to jeffreyn]

Hi

Sorry for delayed response I couldn’t find any information on that but think it’s worth a try

[jeffreyn in reply to ryanJames1]

Thanks. I agree that it's worth a try. I'll look for a second-hand one in a little while (hopefully).

[ryanJames1 in reply to jeffreyn]

openshop.com.au/product/300030

4 x payments of $39 new

[ion_ion]

I was dxd 3 years ago and I had this issue but was fixed by the HDT protocol, which also fixed all my non-motor symptoms.

[alaynedellow]

I had urgency issues but with HDT - B1 i no longer have this issue.

[1LittleWillow]

I had this problem, but it resolved when I started taking high-dose B1 about 17 months ago. The only suggestions my MDS offered were to empty my bladder frequently and to wear pads or diapers (that was before I started taking B1).

[jackedmonston]

The most common cause of urinary problems of frequency and urgency in men is BPH (medicinenet.com/script/main... I've had it for 30 years. Sometimes medication can help (Finasteride, Terazosin). For more serious cases they have a "Roto Rooter" procedure on the ureter which they now do with a laser. A Digital Rectal Exam (just as uncomfortable as it sounds) is a good place to start.

[marnegro]

It's named dysautonomia (autonomic dysfunction) and it is caused by underlying disease conditions. Symptoms include orthostatic hypotension, exercise intolerance, sweating abnormalities, loss of apetite, constipation, difficulty swallowing, urinary incontinence, erectile dysfunction, blurry vision. I'm a PWP for 14 years and I have been experiencing all of these symptoms gradually during the last years. You will find a lot of strategies, remedies, techniques and support here in HU to cope with this. I hope this help you to the extent you are not alone in this journey...… It is always good to keep informed about what to expect with PD.... knowledge is power...… Regards

[ppvanruit]

I had some accidents in the past but not anymore.

In the first place I forced myself to be more aware how my bladder feels. Before I leave the house I encourage myself to feel how much my blather is filled and with the slightest inkling I first use the bathroom.

I also am now keenly aware where I can find public bathrooms along the road to my destination and with the slightest pressure I use the bathroom again.

If I go on a longer trip I abstain from coffee. Coffee irritates my blather.

Kindly PvR

[OREOLU]

Thanks everyone for all your support. I '' ll try the pellvic floor muscles exercises.Hope that helps. And I hope it is not BPH as suggested by Jakedmomston. Not another diagnosis,my plate is full already.