DBS and meds

[dfasci]

DBS and meds. I can’t get my meds correct after my first DBS programming. I used to take stalevo 200 every 2 1/2 hours. The doctor got me on rytary now two 245 mg capsules then following my old schedule. Now I’m overdosing. Who’s got DBS and how much meds they take.

[Pelley]

I do remember the months of "zeroing in" on the settings of the DBS. The meds take a backseat until the optimum results are realized with the electronics. Over dosing does no one any favors and it's easy to do with the addition of the DBS.

What was said to me was "You are your own Nuero". If you need supplement to the electronics, start low and titrate up until you feel right. It will change as the DBS changes, and all over a sudden you feel more in control and right sized.

What no one addresses is the progressions we all face sooner than we want to admit, and going back for more added programming resulting in changing you med intake.

[Aleagles]

I’m now on 12.50% levodopa every two hours and it has taken a fair amount of tweaking. I start the day with 25% of levodopa.

[Crescendo]

My husband had DBS surgery the summer of 2019. He also had difficulty managing the medicine and DBS programming changes. His doctor did not see him often enough when he was having difficulties. My advice would be to see your doctor every 2 weeks. Unfortunately, my husband overdosed on medicine and ended up in the hospital for 2weeks. He now takes 50% of the Sinemet he took prior to DBS and is doing well.

[ConnieD in reply to Crescendo]

Has DBS Made a difference in his PD? Thank you

[Crescendo in reply to ConnieD]

Yes. He was taking 12 Carbidopa/Levidopa 25/100 a day and after 12 years of having PD, it wasn’t working well enough. My husband is 71. He is sorry he didn’t have it sooner. It has helped the tremors in his feet.

[ConnieD in reply to Crescendo]

Thank you so glad it is helping him!

[ConnieD]

Has DBS Made a difference in his PD? Thank you