I feel a little guilty when reading your posts. I was diagnosed with young onset parkinsons 20 years ago. I'm taking Stalevo and have had good luck with it. My problems tend to be more internal than external. I feel like a hypocondriac.
I only have problems walking when the stalevo starts to run low. People, including some doctors don't beleive I have Parkinsons. My question is: Lately I have not been eating much and if I dare to eat a light lunch and even half a sandwich for dinner, I vomit all of my dinner up. This happens regularly. I'm 5'2" and weigh 130 lbs. I'm no Skinny Minny, but just wondering if anyone out there is struggling with this? Thanks for your help. Sue Womack
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It's only been a couple years for me. But the other diseases seem worse than PD so I'm okay with it. I worry about symptoms getting worse with age. Right now it's just micrographia and constipation. I take ropinerone and amantadine.
The area postrema is a structure in the medulla oblongata in the brainstem that controls vomiting. Its location in the brain also allows it to play a vital role in the control of autonomic functions by the central nervous system.
I have the same problem because of my carbidopa levodopa it makes me very nauseous and I don’t know what to do I take a lot of it can you please tell me how you reduce the amount you took or take what you take instead I really need to reduce the amount of carbidopa levodopa I take it I don’t know how to do it -
I don’t even think I have Parkinson’s anymore I think that the carbidopa levodopa it makes me sick and I’m addicted to it and I can’t get off it if you have any suggestions or you can tell me how you do it how you handle this please help
I can’t eat much and I don’t weigh much because it Interferes with the carbidopa levodopa
I was prescribed 6 Sinemet (3x2) which made me very nauseous and eventually I started to bring my very small breakfast up around 45 minutes after eating it. I reduced my dose by 1/2 a tablet every few days down to 4 tablets per day 1.1/2 at 8.30 am 12.30 pm and 1 at around 6.15 but always 30 minutes before food. Or if you prefer 90 min after food. Sinemet still makes me nauseous and occasionally sick but not as bad on the reduced dose. Actually it did not do much for me at all and still doesn’t control my tremors totally but there was a definite improvement now I take the Sinemet 30 minutes before my food. Hope this helps you, it certainly worth a try good luck, but just remember to reduce the dose slowly approximately 1/2 a tablet every 4 or 5 days .
Here is how it came about that I was able to reduce my carbidopa levodopa. No guarantees, it takes dedication, and is not for everybody. That said, it has been very well worth it for me:
No, not usually. Were you originally diagnosed with Parkinsons. Is it young onset. My nausea is probably related to constipation and bladder issues. I know that if you don't have Parkinson's , you probably have a lot of dyskinesia.
This might have nothing to do with PD. Parasites are epidemic. I have had them. Everybody has them. There are wonderful herbs that can treat for parasites. Pharma would be the last choice. Look for green black walnut husk, and others.
They usually come with side effects. (Make sure you get a list of side effects whenever you take a new , or even old, drug.) They can be used in those who don't respond to the herbs. I used the herbs for one month, and I cleared up round worm, liver flukes, etc. I eat clean, organic, and healthy. I believe it was when I, unknowingly drank water that was supposedly filtered , and wasn't. Pharma is a profit based business. Their main goal is to increase profits. They are able to do that when their scientists are able to patent new drugs. Herbs would not make any money for them. They can't be patented.
The man we were helping with ozone saunas and who was on hospice care, was taking 25 medications and on 3 opioid. I printed out a list from drugs.com of the possible side effects. Several of the medicines caused shortness of breath, which he had to go everywhere with oxygen. The other side effects caused problems, as well. He took himself off all meds and opioids. They can damage the liver and the immune. Not all the side effects of pharma are immediately detectable.
Tell me about it! All my husband takes and does owes it to me. I have spent most of my time reading and searching in hopes to turn PD around. . .started last January and am still searching!
My husband was under Dr. C.'s (email) care, and he never threw up. B1 injections for a year were well tolerated. He has switched to oral B1, 500mg. Oral B1 is easier to adjust. Actually I was thinking about combining B1 HCL, am, with Allithiamine, 50mg after supper. I have to search my idea, though.
He was diagnosed last March by Mayo and later by Vanderbilt.
My husband is on 100 mg B1 Hcl, in the am and 50 mg. powder, that we weigh, of the B1 Hcl. We are still trying to find the right dose. What was the dose Dr. C prescribed?
" . . .last March by Mayo and later by Vanderbilt"
Still thinking 2019 He was diagnosed (MAYO) March 2018 and May 2019 (Vanderbilt).
Dr. C. started with B1 injections, 100mg X 2 week. Then he increased it to 3 times/week. He had my husband trialed different doses. Couldn't quite get the right dose. We finally decided to take the oral route which is a lot easier to adjust.
Thanks. What was the first oral dose he took? My husband's weight is 165, he has excellent balance, and has just started with memory problems. His main complaint was hand tremor on one side. He also had a lip tremor, but that went away with B1. So did his pillow drooling at night. I'm trying to figure out whether our dose is too little. We started with 4 gm orally. He has been taking B1 for about a month. Since Dr. C is indisposed, we have to figure out the dose by trial and error.
Maybe your husband could tolerate the powder? We bought B1 Hlc powder on Amazon. I don't know about other forms of thiamine.
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DBS levadopa challenge. Glad its over, but it does raise a question. 
Your attitude is half the battle!
