how do fellow sufferers deal with lower excrutiating back pain any tips/advice
lower back pain: how do fellow sufferers... - Cure Parkinson's
lower back pain
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jimo2017
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Epidural steroid injection. Pain-free for two years
Believe it or not, go to the dentist. There is an association with root canals and crowns where the abscessed tooth goes along meridians to cause serious back pain. Dr. Robert Rowen, MD, demonstrates to patients this very thing, whereby they couldn't walk and then after procane, in the area surrounding the affected tooth, the pain was gone and they could walk again. Then they had to go to their dentist. I suggest a holistic dentist that has a 3-D xray to look for abscesses.
strange that i recently saw dentist for fillings
He probably has no idea that the abcesses in teeth can affect the back. Go to a holistic dentist to see if you have any hidden abcesses. It takes a specialized 3D x-ray machine. My dentist, when we had ours checked, stated it was equivilent to a new Ferrari. You won't feel them, in a root canal, because the nerves have been severed. But this really works. My ex-husband had back surgery, which made his condition worse. He should have checked his root canals.
• in reply tobepo
If your root canal has been done well you should not have abscesses. All root material should have been removed and not “severed”.
Look for the obvious and not the exotic.
bepo• in reply to
When it works, it's not exotic. It has worked for hundreds of people. When I saw my husband's tremor, I said you've got Parkinson's. Go to the dentist, have all your amalgams removed, and have the dentist check for infected root canals. He had an infected root canal. My sister had back pain for years. She finally went to the dentist and had 4 infected root canals. She doesn't have back pain any more. More often than not, root canals abcess. No pain in the mouth, so one wouldn't know.
• in reply tobepo
Why have the amalgams removed? You can spot infection without that. You can also spot apical cysts or granilomas on x-ray.
A cyst or abscess or granuloma is unlikely to be the cause of disk degeneration or foraminal issues - and they tend to be a frequent cause of back pain.
bepo• in reply to
Amalgams emit mercury every time you chew or drink hot liquids. Mercury is poisonous to the brain I had all mine removed years ago and replaced with ceramic. My husband did, as well.
• in reply tobepo
They saw you coming. The mercury is in an amalgam that is chemically bonded and does not wash out or leak with chewing or drinking. You stand more chance of an intake of mercury having them ground by a high speed drill!!
bepo• in reply to
You might want to research this. I believe my information is factual, after years of studying. When they are removed, they have to be removed by someone who knows how to remove them properly without causing the patient to ingest more mercury. This is usually done with a special dam. Everyone wears masks during the procedure. Why do dentists, when they remove amalgams have to put the residue into hazard waste? They are making amalgams illegal in the US. How much mercury do you have in your body? Does that contribute to other illnesses?
• in reply tobepo
Lots of things go into hazourdous waste to make sure it is safely disposed of. That has nothing to do with it’s situation on the mouth! ada.org/en/press-room/press...
Can you give me details if any peer reviewed and published research that contradicts this?
Lots of things may be responsible for many things. At one time PD was idiopathic but now we are heading towards protein problems - and nothing to do with mercury.
That said, if you want to pay out for unecessary treatment that is for you to decide. I would not.
bepo• in reply to
There are many articles relating to the use of amalgams. The ADA gets money from every amalgam that is placed. It's their baby. Here is the history of amalgams:
1819: A mercury-based dental amalgam filling was invented by the English chemist, Bell.
1826: The dental amalgam mercury filling was first used in England and France.
1830: Amalgam fillings were first used in the United States. Numerous harmful effects were soon widely reported.
1840: The American Society of Dental Surgeons denounced the use of amalgams due to concerns about mercury poisoning. Member of the society were required to pledge to avoid mercury amalgam fillings. But many dentists continued using amalgams since they were cheaper, faster and easier to place than gold materials.
1859: Determined to continue, the pro-mercury amalgam factions in America formed its own dental society, first called the National Dental Association; it later became the American Dental Association (ADA).
1926: Prominent German chemist Alfred Stock discovered that mercury was the source of his own health problems, after having his own amalgams removed, Stock then studied the health problems of many of his friends and advised them to have their amalgams removed. He studied the release of mercury vapor from amalgams and published his findings in over thirty scientific papers. Stock led an international movement to halt the use of mercury amalgam filling.
1930’s: Stock laboratory and most of his records were destroyed in a World War II bombing raid, derailing the anti-amalgam mercury movement that he had led.
1957: Dr. Karl O. Frykholm of Sweden published a study wrongly claiming that when saliva covers an amalgam filling, the mercury is no longer released. Ever since then, The ADA has cited Frykholm’s paper as a proof that amalgam fillings are stable and safe.
1973: An American dentist suffering from MS, Hal Huggins, DDS, met a Brazilian dentist, Olympia Pinto, at a conference in Mexico City. Dr. Pinto shocked Huggins by telling him that amalgam fillings are unstable and mercury from amalgams can trigger illnesses like Hodgkin’s disease and sickle cell anemia. Eventually Dr. Pinto sent Dr. Huggins many studies on amalgam research. After learning about the amalgam health issue, Huggins researched and wrote his first major book on the hazards of amalgams.
1979: Measurable Mercury coming from Amalgam. Gay and others at the University of Iowa reported a measurable release of mercury vapor from amalgam fillings; when the amalgams were stimulated by chewing, brushing or hot beverages the release was far greater. In 1981 Svare, at Ohio State, confirmed Gay’s findings.
1983: University of Calgary research dentist Murray Vimy, joined with Michael Ziff, an American dentist and author, to found the International Academy of Oral Medicine and Toxicology (IAOMT) to educate dentist and other professionals about evidence-based dentistry. With his father, Sam Ziff, Michael Ziff went on to author books on such topics as mercury free dentist and dental mercury detox.
1987: Nylander of Sweden and Eggleston of California, did a similar autopsy study on victims of sudden unexpected death. They confirmed a strong correlation between brain levels of mercury and the number of amalgam filling surfaces in the teeth.
1988: DAMS groups formed in Albuquerque, Denver, Chicago and elsewhere, begin to educate the public.
1989: Dentists Poisoned. Nylander and Friberg published an autopsy study showing that mercury levels were much higher in the pituitary glands and the thyroid glands of dental staff as compared to a non- dentist control group. The mercury level in the pituitary glands of the dental group was about forty times higher than that of the controls. Other studies found dentists to have a higher rate of irritability, depression and mood disorders. Dentist have a much higher suicide rate than other white collar professionals.
1990: Lordscheider and Vimy at the University of Calgary School of Medicine placed amalgam fillings with radioactive mercury into pregnant sheep and monkeys. After just 29 days after the placement of the mercury amalgams, the mercury was traced and found in the kidneys, the liver, the gastrointestinal tract, the brain and many other parts of the body including the unborn fetus. For both the mother and the fetus, the highest mercury level was in the pituitary gland, explaining the clinical association between amalgams and depression and mood disorder.
1990 (December 16): The CBS television show Sixty Minutes, hosted by Morley Safer, and viewed by 30 million Americans, exposed the hazards of mercury amalgams; the host interviewed scientists Lars Friberg, Fritz Lordscheider, Murray Vimy and Boyd Haley. The program also exposed the biased attacks by state dental licensing boards on mercury free, holistic dentists. The ADA spokesman squirmed under cross-examination by the host. This sort of dental amalgam expose was never repeated again on any TV network.
1993 (December): The largest German manufacturer of amalgam, Degussa AG, stopped making amalgam.
1994: Sweden announced phase-out of amalgam fillings, starting with pregnant women and children.
1994: Lorscheiderr, Vimy Penergrass and Haley reported that elemental mercury vapor from amalgams fillings is toxic to brain neurons. Low dose mercury causes the neurofibrillary tangles in the brain regarded as a key marker of Alzheimer’s disease.
1994: A human autopsy study on babies who had died of Sudden Infant Death Syndrome (SIDS) was published by G. Drasch and others at the University of Munich in Germany. They found a strong correlation between the mercury levels in the brains and kidneys of the babies and the number of amalgam fillings in the mother’s teeth. These findings were confirmed by another autopsy study conducted In 1996 by Lutz. These studies showed that mercury from a mother’s amalgam fillings is typically the major source of mercury for the unborn child. The German government then acted to curb the use of amalgams in children and women of childbearing age.
1995: G. Mark Richardson, Ph.D., released a report for Health Canada, Canada’s chief health regulatory body, on mercury exposure from dental amalgam fillings. He found that amalgams contribute about 50% or more of adult’s mercury exposure and present an unacceptable hazard. Dr. Richardson advised Health Canada to ban dental amalgams; although it was unwilling to go that far, in 1996 Health Canada established guidelines for dentist cautioning against the use of amalgams in children, pregnant women, people with kidney disorders and other vulnerable people.
Posted in: Dental Health, Main Tagged: dental health, Dental Research, mercury
Jan 9, 2017Dental Fillings Containing Mercury Now Banned in European Union. The legislation is drafted to take effect July 1, 2018, and will affect five hundred million people. It still must be approved by EU governing bodies but is overwhelmingly supported by citizens and lawmakers.
• in reply tobepo
You see. Your slant on things:
Three European Union institutions (the European Parliament, European Commission and the Council of the European Union) have agreed to enact a ban on dental amalgam fillings use in children under 15 years old and in pregnant and breastfeeding women. The ban takes effect on July 1, 2018.
Not quite what you said
• in reply tobepo
Ran marathons in my 30s, ended up going to a chiropractor several times. Then I bought an inversion table to decompress.....not for everyone...but it worked for me. Fyi diagnosed with pd 2015, 62, male
could i ask what is an inversion table
• in reply tojimo2017
Don’t do it. One week of inversion table resulted with inguinal hernia.
dentonpark• in reply to
Interesting Roy, been using inversion table 30 years.....however, I did have an inguinal hernia 10 years ago.
Teeter back table. Flips you upside down to stretch the spine.
It depends on the cause. If this pain is due to Parkinson's impairment interfering with standing up straight your medication may need adjustment. If the pain is due to a subluxed vertebra then a chiropractor visit would be appropriate.
iam on madapor 25/100 ropinerole 8mg any suggestions as to what else to try it is pd i tend to walk like a question mark
That explains why your back is hurting! You do not say how much madopar you are taking. Possibly increasing the dosage may help. Also, many people do better on the time release version instead of the immediate release version. That would be madopar HBS.
Take a look at the picture on page 3 of this document:
bu.edu/neurorehab/files/201...
and take note of this comment and the ensuing paragraph:
"The administration of a dopamine agonist [such as ropinerole ] sometimes induces abnormal postures"
The ropinerole may be your problem. You might want to consider tapering off to see if that helps. You probably will have to increase the madopar to compensate. If you decide to try this I would be interested in your result.
jimo2017,
Without a correct diagnosis, you are kind of shooting in the dark. There are just so many things which can cause back pain, it is too difficult to try and figure out the best option to use.
Back pain and other pain areas are so common in PD and it can be a result of the disease process itself. Also it seems that spinal stenosis is quite common in PD and this can cause back pain . Poor posture is also quite common in PD and this too can cause back pain as can kidney issues, sciatica and nerve compression.
Once you have a correct diagnosis, it will be easier to narrow down any options.
Art
Sorry to hear you are suffering with back pain it can be so debilitating. A proper diagnosis is important to know why you have it.
My husband suffered from a disc prolapse in his forties and has suffered quite often over the years, from back pain.
Forward to now he has PD and the back pain is there as a permanent ache, most of the time. If it gets really bad he finds a TNS machine very good, massage pain killing gel into the area, gentle mobilising back exercises and walking helps with the pain.
He has recently had an MRI which just shows degenerative spine and is waiting to go to our local hospital back pain centre. I think they may suggest spinal injection which can help some people’s back pain.
You might look at injections with ozone. Ozone helps with pain. I have two degenerated knees with torn meniscus, and degenerated left shoulder. I have been using ozone injections as an alternative to knee replacement. It helps regenerate cartilege. I am going to have the torn rotator cuff repaired, and then have ozone injections in my shoulder. I also take biocell collagen 2, which helps with the repair.
My husband had degenerated discs. He changed his diet, cutting out wheat and processed carbs, and artificial and processed sugar. He also did stretching exercises. This was years after chiropractic care. He has, seemingly, repaired his discs. No more problems.
Thanks - never heard of that! I ll research it. I ve had a knee replacement and need another so I m interested in how it can help me as well as my husbands back.
The problem is not only finding a practioner, (go to Dr. Frank Shallenberger, in Carson City Nevada), but you have to pay out of pocket. While I was waiting his his office, another MD, who had one knee replaced, was in Dr. Shallenberger's office to get ozone injections. My right knee is pretty good. I need to do exercises and increase the strength of both knees. Go to Bob and Brad physical therapists on YouTube.
We live here in the U.K. so not sure it would be available here. Could look up the exercises on you tube!
I believe it depends on the type of back pain one endures. My late husband suffered from sciatica, a nerve pain that traveled from his spine down across the buttocks, where all the pressure occurred because of sitting too long. No medicine totally relieved the pain. He used exercises designed to move the various muscles, etc. You will findd exercises online but first you might want to get a diagnosis and some physical therapy where they explain how to do the exercises. Special pillows designed to relieve pressure can help a bit, but again, knowing the underlying cause is important. The only med that actually removed some of the pain was gabapentin (Neurontin) but the side effects caused different symptoms like weakness and disorientation.
Parkinson's back pain may be due to rigidity. My back pain was much improved with stretching exercises after platelet rich plasma injections did nothing.
I have discovered most Doctors FORGET to tell you about the TENS UNIT! Medicare pays for it in the U.S. Its a little device that you can hang on your belt/or in pocket. It has 2 wires coming from it. You then get electro pads. put the pads on where you have the pain. Then hook up the electro wires to them. Turn on the tens unit and choose what pulsating effect you want. Then put it on 5 and see how that feels! You can turn it up to 10 if you want. It helps a lot of people! Janet127
The lessons in this pain recovery program provide a lot of useful tools for enlisting your brain to overcome chronic pain. Now, given the good points made by others about the need to determine the cause of your pain, such techniques may or or may not apply to you. They're especially relevant to pain that has no known structural cause. But I think they do apply sometimes in other cases where one would not expect them to. After all, your brain is involved in any pain you feel. I have found this program to be very helpful for my own lower back pain, attributed to spondylolisthesis. One particularly useful technique is the somatic tracking found in lessons 9 and 10. The whole program is essentially no risk and certainly worth a try.
THANK YOU I WILL PERUSE
My back pain comes and goes without doing anything. It hits if I bend to brush my teeth or when try to get straight up. If I stay straight up or sit down or even in bend position but do not move I have no pain. Is this PD related?
67M, dx 2011 with severe spinal degeneration and scoliosis plus PD posture. Back hurts all the time when standing.
I find sitting with my back against a Beurer mains powered heat pad gives better relief than a chiropractor or an osteopath at a fraction of the cost.
I get mine from amazon: smile.amazon.co.uk/gp/produ...
It would be great if a battery powered version was available...
For help when walking I use a pair of Levi Traveller hiking poles which help with posture and balance: smile.amazon.co.uk/Leki-Tra... The carbon fibre ones are twice the price of alloy, but well worth the extra!
Good Luck!
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