Did Hinz protocol for 8 or 9 months. ANY B-6 caused me to vomit within mere minutes of ingestion. I was using an ND for guidance at $300 per hour. Let me tell you, he spoke slowly and repetitively! Since it was all out of pocket, it was not financially sustainable. The practitioner had me up to 18gm 40% Barlows mucuna daily. Was worn through with all the nausea, ineffective guidance and financial impact so returned to C/L and began HDT therapy. The B-1 is really helping, but depression has returned. ( mucuna seemed to alleviate depression entirely)
Has anyone thoughts on returning to natural l-dopa successfully? Are there better sources than Barlows 40%?
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AlpacaGal
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Works quite well. She is off Sinemet 25/100 three times a day and currently use one Dopa Boost pill a day which carries the equivalent of 125 mg of L-Dopa. She also uses a variety of supplements.
And this of course was not recommended by her neurologist.
[Edit]... and it does have some B6 in the capsule, so it may not be a good choice for you.
It pains me to hear your experience. This person, whom you trusted to possess the knowledge to make you better, instead caused you prolonged physical suffering and charged you fat fees for doing so. Yes, I loathe PD, but I loathe people like your callous and greedy ‘ND’ even more. We may be desperate to find a cure for our ‘degenerative brain disease with no cure’ or to simply feel better and function like we were once able to, but we are not powerless to stop conmen taking advantage of our plight.
For what it’s worth, my understanding of mucuna pruriens is that the only truly natural product contains only 4-7% levodopa which is naturally occurring. Any MP product claiming to contain a higher percentage of l-dopa is what is commonly labelled as an ‘Extract’. As I’m not too certain of the extraction process that’s used to deliver the l-dopa content of, say, 15%, 40% or 99%, and as incidences of nausea from its use are reported quite often, I have largely stuck to the natural 4-7% l-dopa variety and have had no nausea to date. I also take half a Sinemet with my MP as carbidopa is said to help minimise nausea caused by levodopa. There are many people here sharing their positive experience using mucuna so please do look them up.
It might be worth a shot to try a sublingual P5P tablet and quarter the tablet or even smaller with a pill cutter to experiment with a lower dosage and build up over time - your nausea response will gradually subside. Your body needs b6 and lacking it can cause depression along with other debilitating deficiency symptoms. Be sure to take the b6 as far away from L-dopa, and take it with a meal.
You might also want to look into supplementing l-theanine to help with depression.
l-dopa is broken down in a body by a process that depletes B6. To counter the potential deficiency, you must supplement B6 away from any l-dopa meds/supplements.
I've been using mucuna for 3 years now, I'm up to 1500mg a day of 99% and no nausea. I take B1, lots of other supps., on Keto and detoxing. I have lots of energy and seem to sleep well most of the time.
What brand of Mucuna are you using? I am thinking to give it a try since I am taking Sinamet every 2 hours and I start to exoerience bad off episodes when the meds do not connect.
Common sense would tell me Vit C and B vits, however, I just got done watching the seminar on the Mitocondria. I now would have to say that getting the Mitochondria healthy would be the key. I'm detoxing with a product called TRS and doing Keto, both are giving me energy. Keto is feeding the Mito and TRS is cleaning toxins from Mito as well. Mito is the key to energy, many prescription side effects damage Mito. Heavy metals, virus, bacteria, parasites , pesticides preservatives, all damage Mito.
Everything good you would do for PD helps the Mito, sleep, diet, exercise, etc.
I did learn that Mito are like the rest of the bugs in our gut, body and brain, antibiotics and pesticides kills them.
I've been using Naturebell MP capsules together with 1/2 sinemet(100/25) since I feel bloated when I just take MP. I take this combo 3 to 4 times a day with 1/2 tab 1mg Ramipexole in between those doses when I feel that an off period coming on earlier than my next scheduled dose. I also take B1 early in the morning together with my first dose of MP+sinemet. I Also take qunol, b complex, and ginko biloba before bedtime
My husband uses Pure Selva 100% Mucuna Pruriens from India sold on Ebay Uk but may be available in the States. It is a quick 'fix'. He takes half a teaspoon in a small amount of liquid. Fizzy works the best.
My husband has taken mucuna successfully for 5 years. He takes Barlowe's. He takes 2,000 mg of mucuna 5 times a day. With that, he takes 1,000 mg of L-Cysteine, 5-htp and L-Tyrosine. He takes them at meals, one at midday, and one right before going to bed. He is still considered stage 1 PD. His pull test was great. He just started on B1 at 1 gram in the morning and 500 mg before lunch. We are thinking of cutting this down. The second day he started this protocol, his tremor was totally gone. We know we will be successful, but also know we have to find the right dose with patience.
Yes. 5 x day. It has to be taken with Tyroseine and 5-htp. He gets sick if he doesn't take the amino acids with the mucuna. We are hoping to get rid of some of the Mucuna once the B1 is adjusted to the sweet spot.
He takes 1,000 mg L-Cysteine, 2700 mg of Mucuna, 2000 mg L-Tyrosine, 400 mg 5-htp. He takes this amount 5 times a day. He takes it with breakfast, lunch, dinner, mid-day, and before going to bed. He is 74 and weighs 160.
No. He has had a tremor in his right hand, a lip tremor, and drooling, which went away. Right now, we are trying to figure out the right dose of B1. He is now down to 300 mg 2x a day.
Often times, B6 and B12 and folate are not easily absorbed by certain ethnic groups, primarily English/Irish. Both George, and I, English/Irish, take methyl B12 and folate. He stopped the B6 because Dr. Costatini felt it interfered with B1. B1 (Thiamine) has helped stop the progression of PD and has improved symptoms on 4,500 people. Research it on this site.
I don't know how you wean off. We studied c/l and decided the side effects were too great, so we started with the Hinz protocol, which is all natural. You might see if you can find a doctor that could help you with the transition. Dr. Michsley/ (sp?)
We have used Barlowe's mucuna and amino acids for 5 years. It has kept my husband from getting worse. He is still stage 1 on the PD scale. No side effects. If there is nausea, take amino acids and take after a food
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