New Diagnosis,

[Adubyaem]

Age 73, recent diagnosis. Started Sinemet three weeks ago 25/103 times a day. Some improvement in the symptoms but side effects of lightheadedness, mild malaise and now diarrhea make me question whether to continue or ask for a change in medication. Thoughts?

[ddmagee1]

I would stick with Sinemet, and see if those symptoms are truly side effects. If you still experience these symptoms, in a few weeks, discuss them with your doctor.

[Aleagles]

Stick with it another month Levadopa is the most common treatment and is the most effective as I understand it.

[Hidden]

Diagnosed 2012

My regimen:

The positives: no bradykinesia, I cut my food with a knife, no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms...

Entering my 8th year post diagnosis and have not fallen, not once, to the surprise of my neuro. Was seeing neuro every 6th month, last visit he set app one year. He said if needed we could do some changes earlier. He said my condition can change in as little time as one week.

New schedule, now I follow this regimen:

2 x day C/L 50-200 ER : 8 am, 5 pm. Because it is ER, I take with or w/o food.

2 x day (8 am 2g, and 5 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:

(Thiamine HCL is oral substitute to injecting B1) 2 x day (morning 2g and at lunch 2g)

Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever...".

Parky people say the first five years is your honeymoon stage with Parkinson's. After that, progression more rapid.

I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –

Doctor Costantini - “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.

Join my facebook group:

"parkinson's thiamine hcl"

facebook.com/groups/2322600... ; …

Parkinson's Relief, Questions and Answers

Guide:

1. Read page, About.

2. On Files page, open B1 FAQ document.

3. On Files page, download First Appointment document , answer and submit.

4. In Files, Dose Adjustment

5. In Files, (2) From and by Dr. Costantini

6. read Announcements

Website: Dr Costantini's guidelines on Parkinson

stopparkinson.org/en/table-...