I was surprised to read that her diagnosis has been updated from Parkinson's to PSP.
New diagnosis for Linda Ronstadt - Cure Parkinson's
New diagnosis for Linda Ronstadt
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Beckey
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She is fortunate in the PSP symptoms she has. She has no DOUBLE VISION (as she is still able to read her books). I don't hear of HEAVY FATIGUE, nor of dystonia of the neck (such that there is PAIN with the slightest move), nor swallowing challenges.
I do not wish PSP on anyone, but she seems to be doing fairly well.
My favorite album of hers was FRENESI.
Mom who lost her son to PSP on May 4, 2017.
She has had Parkinson's for years. Do you know, how come it took so long to get this different diagnosis? Thanks Mary
I don’t know about her but my late husband had a diagnosis of Parkinson’s for 8 yrs before PSP was diagnosed.I don’t think it is uncommon.
YouTube....Jim Bower, Neurologist, of the Mayo Clinic...MAKING A DIAGNOSIS OF PSP, CBD, OR MSA. The video is 41 minutes, but well worth the time.
Btw, PSP is a Prime of Life Brain Disease, one of six (PSP, CBD, MSA, FTD, ALS, and CTE).
Los Angeles, CA, USA
For the record, these so called "prime of life" neurodegenerative disorders are toxic brain injuries.
All non-genetic neurological diseases, are diseases of old age that occur after decades of low level environmental exposure to toxins; recently a 16 years old boy in North Dakota (USA) passed away from ALS a month after being diagnosed at the Mayo Clinic in Rochester, MN. He was sick for a year and died a one week after his 16th birthday - this is extremely fast progression. His was clearly a toxic exposure (most likely pesticides, because it's North Dakota), but you will never get doctors or regulators to admit it. The scientific dogma is "we don't know what causes ALS/FTD, PD, AD, MSA, PSP, CBD........." when in fact they do.
Dementia and neurological degeneration is not a normal part of aging any more than autism is a normal part of childhood, and we should not accept neurological disease and cancer as a normal consequence of life.
It is a failure of an industry captured government to protect its citizens from unreasonably hazardous pollution, this includes pharmaceutical contamination of our person (vaccines).
In my opinion, conventional agriculture is more responsible for decline in human health than industrial manufacturing, which is regulated by the EPA - farming is underregulated and for all practical purposes unregulated because of our captured government.
I have firsthand experience with Mayo, they are corrupt and captured by industry/ government, which provides their research funding - they happily promote dogma.
Dogma should not be promoted on HU. End of rant.
SE
(Minnesota, USA)
Respectfully, we need to acknowledge our disagreement on THE CAUSE of PSP.
The six brain diseases are called PRIME OF LIFE BRAIN DISEASES because they tend (not always) to occur in middle age, not because they are part of the aging process..
My son died at barely 55 years of age. His first symptoms occurred at 52.
I PERSONALLY believe there is a strong GENETIC component influenced by stress and environmental issues. His father died of FTD at age 65.
Happy holidays.
• in reply toenjoysalud
Sorry to hear about your son, enjoysalud. My heart goes out to you. It must be incredibly heart wrenching to lose a child.
You must have an angels 👼 heart to wish the rest of us here, “happy holidays !”
My prayers are always with you and your family. May GOD bless you always.
Respectfully, Ramesh
First, please accept my condolences on the loss of your son and husband. I don't think we're that far apart. These are sporadic neurological diseases, not necessarily occuring in ones prime of life. Who coined this phrase that you are relying on?
rarediseases.info.nih.gov/d...
Thank you for that NIH site. Nice to have my personal opinion reinforced.
My ex-husband.....we divorced when my son was 12. We stayed in Los Angeles. My EX moved to Chico, CA.
My son's VERY FIRST symptoms were March, 2014....DOUBLE VISION, SLURRED SPEECH, EXTREME FATIGUE. It was all sudden.... no warning that I or my son was aware of. My son's form of PSP was UGLY with all the horrible symptoms. When he died he couldn't see, couldn't walk, had a PEG (two bouts of aspiration pneumonia) , had a seizure, lost all bodily functions, his speech was gibberish, but he still managed to communicate with his thumbs, pointing , trying to write on our palms. He, himself, seeing things only getting worst asked to no longer be fed. Hospice and the family supported his decision. He died May 4, 2017.
You have NO idea how much I miss him, his company, his insight, his compassion, his sense of humor.
The phrase.... I have heard and read in many different periodicals, published material, and speeches. I think, but not sure, that Jim Bower may also mention the term in his video.
PSP and Parkinson's may have a few common symptoms, but produce difference protein in the brain. TAU for PSP. Alpha-synucleain in PD.
Los Angeles, CA, USA
I know three people who had a diagnoses of Parkinsons that changed to PSP but I do not remember hearing of anybody that was diagnosed with PSP from the start. Many factors I suppose. I think I may be next in line. Muscle deterioration, muscle pain, stiff neck (frozen ) inability to look up and down , falling backwards, unable to find vertical, always off balance ,dropping things and knocking over things.
Time to read all the info at the P.S.P group here at Health Unlocked
I hear you. My heart sank when I read the symptoms: vision problems, neck pain, a compulsion to fall backward.
Hi,
I thought tendency to fall backwards also occur in PD. But why can't doctors just diagnose PSP right away?(Differential diagnosis)
Watch the YouTube video I recommended. It answers all your mentioned questions.
I'm so very sorry. Hope there's something that you can do about it. You're in my prayers.
First, watch the YouTube video I suggested.
• in reply toenjoysalud
I posted the link to the YouTube video that you suggested in the comments and I have also created a new post with the information. I have given credit to your superb research skills 😊
The link is:
enjoysalud• in reply to
Thanks for the compliment. If I have any research skills I owe it to my alma mater, UCLA class of 1966.
Thank you for doing all the posting.
And Emmy Lou Harris brings dirty laundry over?
Cancer and neurodegenerative disease are not "bad luck" they are caused by toxic exposures. You can try to determine what your risk factors are but the biological response is fairly universal, it's our individual genetics that influences expression of disease. There is significant overlap and comorbidity among neurological disorders.
I was originally dxed with Parkinsonism w/tremors (negative datscan, abnormal brain atrophy) later changed to ALS/FTD. I am negative for Mendelian Parkinson's genes, but do carry an ATP13A2 (park9) mutation of unknown significance (opinion of genetic counselor is suspect). I have learned that this is a genetic vulnerability to development of MND/ALS. Our genes are our tendency not our destiny. It takes a triggering event(s) to tip us over into a diseased state. What I have yet to learn is if I was born with the park9 mutation or if it was acquired as a result of my Roundup poisoning.
There is published research that states ALS and organophosphate poisoning are the same and another that suggests ALS is paraneoplastic (cancer). Cancer is not rare among people diagnosed with ALS.
My mother is in her last days of fighting with PD/LBD and I suspect some degree of motor neuron involvement. There is clearly a familial genetic vulnerability to environmental toxins.
I had a documented agricultural chemical poisoning and consider myself well informed.
I view neurological disorders differently because of my experience. I see these brain diseases as variations of the same thing - like different flavors of ice cream. We have different genetic responses to similar toxic burden that can result from chronic low level exposure or if acquired early in life - acute exposure. Often the triggers go unrecognized and the diagnosis is idiopathic. If you do recognize the exposure and disclose it, than you are likely to go undiagnosed - even at autopsy. I was relentless in my pursuit of the correct diagnosis of my neuromuscular disease.
I emphasize that cancer and neurodegenerative disease are not bad luck they are caused by exposure to environmental toxins.
The biological process of oxidative stress and the production of reactive oxygen species sets off an inflammatory chain reaction in our body and as the cells die they poison other cells nearby in a process called autoinduction. This is how neurodegeneration happens. Our genes are responsible for how we respond to these toxic insults, and whether we develop cancer, neurological disorders or both. Rarely, some people are resistant.
I believe our body has an innate ability to heal itself. We have to address the inflammatory response, this is done with nutrition and lifestyle changes. You cannot supplement yourself to good health while maintaining an unhealthy lifestyle.
Neurological disorders can be improved and in some cases progression halted or reversed. There are documented cases of recovery from ALS, but if you listen to medical dogma, ALS is universally fatal in 3-5 years more or less. Theoretically, I should be dead by now, it gives me hope that I can manage this as a chronic illnss - and you should be hopeful too.
I strongly recommend the book written by Dr. Terry Wahls and the Wahls protocol. There is no reason why it would not be helpful in treating all neurodegenerative diseases.
Here's to our collective healing and recovery of our health.
SE
I watched it. I'm still a bit at sea. Scared too.
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