PD Parkinson's diagnosis switched to Functional Tremor FND

[Rootbr]

I'm 49 years old and 1 year ago, I noticed a slight dominant-side resting tremor, arm and leg. It consistently got worse over 4 months, until I was diagnosed with Parkinson's by a movement specialist neurologist.

Started carbi/levadopa to no effect. (Also tried a dozen different supplements)

6 months after first diagnosis, neurologist switched diagnosis to FND, Functional Neurological Disorder, or more specifically Functional Tremor (sometimes also known as psychogenic tremor or conversion disorder).

Dr. said the tremor was too strong, too quickly, too variable, distractable, and I'm too young for it to be consistent with PD. He referred me to a website, neurosymptoms.org and that was about it!

I'm 49 years old and happy (if) it's not PD, but my tremor is stronger than ever (varies but mostly moderate through the day, resting and increasingly active) without any definitive treatment prospects. Anyone else with a similar experience?

Thanks!

[GymBag]

This is from the web site that the Neurologist referred you to.

" All material on this site is copyright of Dr Jon Stone unless specifically stated otherwise. Please let me know if you want to borrow or reproduce any text from this site by emailing [e-mail]. "

Dr.Stone seems to be the key. I would contact him and ask him if he knows anyone in your country that can help you. Some Doc like your neuro do not like treating un-treatable disease. It takes a special person

[Hidden]

You may find some helpful information here fndaction.org.uk