I still hospitalized since August 24. Doctors are looking for something else may be coexisting with the PD or if this is an accelerated progression of PD. They have done MRI CT with contrast and Lumbar punctiion and labs. They are looking for Gillian Bare syndrome but lumbar punctiion results were ok. I urge anyone here in advanced stage of PD to tell me if the symptoms I am feeling are those you are having to discard that I’m denying my progress. I think what I’m feeling is different to PD or very different to what I was leaving two weeks ago.
I was on a fair dose of CL three times a day. The last dose was at 4:00 pm no other dose until next day morning. Get use to watch tv and been around the house moving with trouble shuffling.before bed time. Sleeping with dreams and interrupted like everyone in this forum. I visited bathroom two or three times at night may be shuffling or some freezing. General sore in my back some stiffness and testing tremor. Off periods during the day come gradually consisted in tremors, shuffling and freezing mostly but I still functional, driving, etc
Now Dose last fewer, off longer. off period now come suddenly first symptom is a chilling like movement in my left hand and then in less than 10 mints I get immobilized starting from my feet fixed to the ground incapable to move with a squeezing like feeling starting from toes and up to the.body immobilization of arms and legs come in few minutes incapable to grab my pills and drink if I don’t do it quick
Off period at night get harder get immobile all night. Squeezing like feeling has increased everyday during this time. From legs to upper body Now thightening up to shoulder and neck during hospital stay. Numbness in almost all body. Looking for help!
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marnegro
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It seems awfully quick to have that radical of a progression. Is it possible that you had a violent reaction to one or more of those meds which in turn greatly exacerbated your PD? If that is the case, recovery may take some time as it has with others who have experienced drug interactions or serious illness.
Not sure if my comment here is relevant. No idea why you were hospitalized or what your initial diagnosis was, or subsequent one was. Extremely quick acceleration of PD symptoms is somewhat unusual unless you have been hit in the head, have an identifiable severe concussion, a continuing source of head trauma, etc.
"Decadron" (its brand name) has been discontinued in the US.
Dexamethasone, a synthetic adrenocortical steroid, is its equivalent.
Both Prednisone and Dex are generally prescribed to suppress the immune system. Usually they are not prescribed together. Dex is super powerful, and I do mean super toxic. 1.6 mg equals 10 mgs. of Prednisone. So, it is usually the drug of choice in serious situations, really serious especially if given for any length of time.
Did you get these meds prescribed by two different doctors who didn't consult with each other? Sounds like it. If so, make sure they know that they are prescribing two complimentary drugs. Side effects are common from both the longer you use them.
Flexiril is a common muscle relaxant that is sometimes prescribed for PD patients due to its ability to reduce acetylcholine levels (assuming of course dopamine and acetylcholine levels are out of balance.) Not sure how your docs figured that out.
Good luck in your journey. If you live in the US (I doubt it), go to the nearest PD Center of Excellence.
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NAC, update
A nightime story some of you might find entertaining.
Reducing madopar
Perception/Sinking
punch drunk and off time
