Has anyone had any neck problems

My husband had a bit of a scary episode last night, his neck went all tight on one side and he couldn’t get his head straight and could hardly breath, I nearly phoned an ambulance it was that bad but It eased off after about 15 mins and then went back to normal. Just wandered if anyone had ever experienced anything like this

Thank you

[OREOLU]

Hi Emup.

I experience this too, twice or more times a month. It has been going on for about 3 months now.Does he sometimes have neck pain too?I think this might be neck muscle dystonia.You can google it,or check with your Doc.

[Hidden in reply to OREOLU]

Hi! Thanks for your reply! We did think it might be that after a bit of research, just a bit scary at the time it happened. No he doesn’t normally suffer with neck pain but does get a lot of back pain and tingling in his spine. Thanks Emma

[T-Writer]

Hello, yes I get that form of dystonia (spasmodic torticolis) whenever my meds go off far enough -- my head turns to the left as if I am trying to look over my left shoulder, with the muscles in the left-back of my neck clenched up unrelentingly as hard as they can contract. I also get the same hard contraction of the muscles in my shoulder and down my ribs, making it hard to breathe. It is VERY painful! Sound familiar?

Personally I have 'tells' that alert me when a bout with this is in the offing: The left side of the back of my neck will tingle; the next thing to happen is the toes on my RIGHT foot will curl under. As soon as the toes curl I hurry and take extra meds because I know I'm in for it. Soon I won't be able to swallow unless I use both hands to force my head around and hold it there while my husband puts meds in my mouth and holds up the water glass and drinking straw for me.

Lying on the floor on a blanket with two small pillows strategically placed under my torso and helps me relax all my muscles as much as I can, and cope until the meds kick in (15-40 minutes). I hope your husband has as few episodes of this as possible -- it is excruciating and extra-humiliating.

[Hidden in reply to T-Writer]

T-Writer. I would like to point out one thought after reading your post. There is nothing humiliating about what we go through in our Parkinson’s journey. We should only make sure that we promote the awareness of the multiple issues that come with our condition and also as a side effect of the medications that we take to alleviate our symptoms.

I used to feel shame, embarrassment and extreme discomfort when my symptoms would manifest in public. However, I use those situations as a teaching moment. I demonstrate how my situation is transformed in 30 to 90 minutes after medication ingestion and then after witnessing the magic, I initiate a discussion about Parkinson’s.