Did You Get Manufacturer's Assistance For Your Rytary? If So Please Respond.

[OREOLU]

I am about to switch to rytary and I cannot afford medication.But I intend to apply for assistance from the company.I understand from the company's website that they give 90 days free supply of medication,but after that,it does not state what it will cost to procure the drug.So if you have been in this situation before,please help.What is the requirement to be eligible for continuous supply of drug? Thanks.

[JAS9]

This foundation receives donations and distributes the money to people like you and me. For the last 2 years, they've paid the entire amount left over after my insurance pays. In the end, my Rytary hasn't cost me a dime! I've just been approved for a third year.

PANfoundation.org

There's another, similar organization, but I haven't used them. If you need their info I'll try to find them again. Sorry, I don't know where you live or if PAN has limits on the countries they serve. I'm in the US. Good luck!

[OREOLU in reply to JAS9]

Hi JAS9,

Thanks for your reply.I live in the USA.

[Fishaholic]

Hey I got my threw Rytary assistance program. My doctor contacted them I spoke too a women on the phone and she ask me what I could afford. I told her not very much, she said $5.00 to much I no. 450 36.25-145MG

[OREOLU in reply to Fishaholic]

Did you initially get free supply of Rytary for 90 days,before you started paying $5.00?

[Fishaholic in reply to OREOLU]

My Dr. gave me samples first

[OREOLU in reply to Fishaholic]

Thanks.

[PDGal4]

I pay $20 a month through manufacturer,, but have just gone on Medicare. I will probably lose assistance as says right on card they don’t work with Medicare. But have had financial assistance for two years.

[OREOLU in reply to PDGal4]

Hi PDGal4,

Did you initially get free drugs for 90days before you started paying $20.00?How many pills did you get for $20.00?

[PDGal4 in reply to OREOLU]

No free 90 days. My doctor gave me the form but it’s online. I’ve read the other replies. I had no income checking. Last year I paid for 2 prescriptions when 2 different doses prescribed. That is, 1 x 95 and 1 x 145 per dose. This year Rytary manufacturer changed so its one copay no matter how many prescriptions. My RX is 3 x 95 mg four times a day. It’s a lot of pills for which I pay $20. As I said in my original post, I fear I will lose this benefit under Medicare.

[OREOLU in reply to PDGal4]

Thanks,I will search the web.

[DavDav]

Because of my income I got no assistance from the foundations. It cost me $950 for three months . I went back to c/l which works better for me.

[OREOLU in reply to DavDav]

Hi DavDav,

I am not working,so do you think they will consider other assets,like savings or stocks,for eligibility?

[DavDav in reply to OREOLU]

I really don’t know. I called a foundation. The first question they asked was my income. They told me I would not qualify for assistance which is what I expected. So I just switched back to c/l which works better in my experience.

[OREOLU in reply to DavDav]

Thanks for your response.

[etterus]

Try TAFcares.com

[OREOLU in reply to etterus]

Hi etterus,

I will try,thanks for your reply.

[Cbauer]

Rytary is made by Impax. They have a patient assistance program which provides me with hundreds of pills each mont. I get social security as my only income. I am not sure what their income or assset limits are. You can deduct medical expenses from income. You might want to transfer assets to family if you willlbe doing that anyway. They are not extreme. You should still be able.to keep your first born. If they cannot help ask any and all charitable groups and maybe try to get into a research study.

If you have any unusual expenses or an extreme level of disability you may appeal for special circumstances.

[OREOLU]

Hi Cbauer,

I will search the web.Thanks for your help.

[Fishaholic]

Hey I on Medicare and I get assistance on my part D drug coverage. Why do you want to be on Rytary so bad? I wished I would never got on it . It is hard to get the doses figured out and food plays serious role in it. Check this site for side effects.

[OREOLU in reply to Fishaholic]

Hi Fishaholic.

I am not that desperate to be on Rytary.My MD suggested it because I complained about frequent off periods that I am getting with sinemet and my on time with sinemet on last for 2 hours now.Before my sinemet used to work for 4 hours.I take 1tab & 1/4 four times a day.Are you still on Rytary? Is it working well for you?

[Fishaholic in reply to OREOLU]

Yes I’m still on it, I do 145mg 3@ 6:00 am 3@ 9:00 am 2@12:00pm 2@3:00pm 2@6:00pm bye that time I get dyskinesia and sometime early. It’s really unpredictable and you make sure you wait 2 hours before you eat anything.high protein meals or a killer for me. I had a hamburger with a friend bought it was about 1:30 pm. About 30 min. later I started shaking and trembling, It messed up my

day up. I don’t want to let go of my 🥩

[OREOLU in reply to Fishaholic]

I think it is all Levodopa based medication that causes dyskinesia,depending on how much is ingested and how long you've had pd.Still,the experts say some people don't develop dyskinesia.If I take too much sinemet,I do get the head shaking,type of dyskinesia slightly. Even with the sinemet I am taking,I try to fast as much as possible,leaving protein till dinner time.How many hours does a dose of Rytary work for you before your next dose?

[Fishaholic in reply to OREOLU]

3 to 4 hrs if I lucky I had a cinnamon roll at10:45 and now I feel shakier before I did my dose 12:00pm. I have Parkinson’s all most 14 years, I was thinking about DBS about 5 years ago.but the Dr. told me I would probably have to do the same amount C/L I think I was doing 1.5 dose 8 times a day 25/100

[OREOLU in reply to Fishaholic]

If medication works for you with side effects one can deal with,then I would not want any kind of surgery that will create more problems.What I don't understand is some people on Levodopa drugs don't get dyskinesia.I hope to stay on medication as long as possible,maybe one day,they will find a cure.

[Hidden]

I did not find Rytary to be any more sensitive to when/what you eat than C/L IR was...

And I can't think of any reason why it would be...

For me what Rytary provided was a more consistent performance...

But I don't take it anymore, since my new insurance requires me to pay $1831 for a 90 day supply (although I am no longer working, my remaining family income is well above the "poverty level")... My old insurance required me to pay $220 for a 90 day supply (and I thought that was expensive at the time, but it well worth it)!

[OREOLU in reply to Hidden]

Hope to start Rytary as soon as I get approve.Also, hope the US government will curtail the price of expensive drugs like Rytary,soon.The big pharma are just too greedy.

[Fishaholic in reply to OREOLU]

Hey Oreolu, won’t your Dr. give you free samples?

[OREOLU in reply to Fishaholic]

My doc gave information printed from the drug manufacturer's website. I think the more Levodopa you get into your system to control the symptoms,the stronger the symptoms come at you during your off time. I am experiencing this with sinemet.

[OREOLU in reply to OREOLU]

No free samples from Doc.

[Fishaholic in reply to Hidden]

Rytary change my self my off time is worse then before I started it, every body response to there body differently. I really believe it starts in your gut. just like people say they have heart burn. what’s telling them there stomach or brain?🤔

[OREOLU in reply to Fishaholic]

Hi Fishaholic,

When you said your off time is worse,what symptoms are you referring to?

[Fishaholic in reply to OREOLU]

Slowness , stiff joints,rigid muscle in right arm and hand,poor balance falling down . Drag right foot. just about everything you don’t want.

[OREOLU in reply to Fishaholic]

Hi Fishaholic. So do you think Rytary helps better than any other medication you were using before,considering the positives and negatives?

[Fishaholic in reply to OREOLU]

Hey that’s a good? I don’t think Rytary is a better drug for me. I never had as, Many side effects . Doing the old C/L my body shake when it wore off and I didn’t get the stiff joints and muscle cramping in my right arm and hand cramps . When the Rytary is working it’s good when it kicks in. Yesterday I did my 3:00 dose it finally kicked in. I don’t know what I was doing wrong I know sugar effects me on it. Lately when I do my last dose I start getting strong saliva output and it makes me choke. I get my water pick and try to rinsing it out. It feels like someone sprayed cooking oil in my mouth.

[Hidden in reply to Fishaholic]

Hi Fishaholic,

What dose of regular C/L do you take? And what Rytary dose did your take?

I just wonder if you had the correct Rytary dose. Note the prescription information for Rytary says: "The final total daily dose of levodopa from RYTARY was approximately double that of the final total daily dose of levodopa from immediate-release tablets."

This is because the bio-availability of Rytary is less then plain old C/L...

So for example, in my case, I went from plain old C/L [2 x 100 mg tables 3 times a day] to Rytary [2 x 195 mg tables 3 times a day] (i.e., roughly double).

[Fishaholic in reply to Hidden]

Generic C/L. 25/100 1&1/2 tab. Every two hours@ 6:am 8:am 10:am 12:pm 2:00 pm 4:00pm 6:00 pm 8:00pm Now the Rytary stared at 25/145 4 capsules every 4 hours. Now my Dr. has me doing 3 capsules 4 times a day and 3 @ bedtime .

[Fishaholic in reply to Fishaholic]

That’s 1025 mg Levodopa more then my old C/L

[Hidden in reply to Fishaholic]

I count:

Generic C/L dose = 8 * 150 mg = 1200 mg levodopa

Rytary dose = 15 * 145 = 2175 mg levodopa

which is little shy of double... but still should give pretty good results...

Anyway, sorry it is not working well for you...

[Fishaholic]

You forgot two include the 1/2 doses on the Generic C/L Thanks any way

[OREOLU in reply to Fishaholic]

Hi,can you get back on generic C/l if Rytary is not working well for you. I am really worried about additional side effects.

[Fishaholic in reply to OREOLU]

I don’t know yet . I go see my doctor in two weeks.Did get your Rytary yet? keep me posted.

[OREOLU in reply to Fishaholic]

Thanks,not yet.Will do.