Medication

[Skullgulch]

Hi, have not on for awhile been busy. Update my wife was given cipro for uti for a year off and on then given mestinon on April 5, 2018 for low blood pressure and she has been mostly bed ridden since with great pain. We went to pain doctor said he could not help due to pain was drug caused, very disappointed we went home. We signed up with hospice last September off last month. They gave about any pain meds you can get. Morphine made her a zomby I could not manage her dead weight. Have tramadol seem best use to this day sparingly, it seem the more pain meds take pain is more frequent so careful how use. The carbo levo dope she takes also mucuna powder she appears to become allergic to carbo. She would get sick. The nurse got her 10/100 carb and still got sick and take very little mucuna. Wait 2 weeks try carbon again same thing happen did this for 2 months then nurse said not to take carbo anymore. Now that we are off hospice she will see a neurologist next Wednesday I have a list of many questions for him. Many of you answered back when I mention what happen last April when she took cipro and mestinon . Anyone have any comment on situation now. Thanks

[park_bear]

Bed ridden since with great pain - did that start with the cipro?

[Skullgulch in reply to park_bear]

Had some pain and Charlie horses when first took cipro July of 2017. But the pain started April 7, 2018 when took mestinon. It was very serious pain. Had Charlie horses 1sr 2 days in thigh and calves then went into pain legs then arms back and lately has been in the knees. I used something I found and relieved pain in legs and arms thank god.

[park_bear in reply to Skullgulch]

It seems "muscle twitches" are a common complaint with this medication.

askapatient.com/viewrating....

Add Parkinson's to the mix and full-on painful muscle spasms are not a surprise.

So many ways to treat low BP, including medications approved for that purpose. Mestinon is NOT approved for this purpose. What on earth moved an MD to prescribe it?

[Skullgulch in reply to park_bear]

I do not know why for sure I question and he said there was a study done show it helped. He is no longer in practice at banner health.

Thanks

[Donzim]

Copra is murder on the gut...if it were my loved one, I would think there is a need for therapeutic probacteria to get back in sync plus l glutamine for gut healing. I also would think that the nausea is not an allergy but a common reaction to carbadopa...happens frequently. If you take enough mucuna, it will happen then also from the dopa on the plant. I would be sure to take some food (no protein) first, dopa, then more food. If that didn’t work I would ask for extended release dopa or get the doc to have a compounding pharmacist make up a formula with something in the capsule which will slow down the effect of the nausea...a compounder will know. My husband was so sensitive to dopa that even the macuna made him ill. I spent many nights watching tv and manually stuffing the powder into capsules. The caps slowed the action down enough to eliminate the nausea. It takes a lot of caps though....he took 12 at a time and eventually had to go on pharmaceutical dopa. Took Rytary later and it was wonderful for him. Also took magnesium to relax muscles...the glycinate form in order to prevent having the runs. If he were still alive, no question I would give him CBD, topically and subliminally. It is a fabulous product for pain, relaxation and no known side effects. You just have to be selective in brand as there is a lot of poor stuff out there. I use Cryotherapy Hemp Extract gel and drops by Nature’s Script. I have a very painful swollen knee with a bone spur, arthritis and muscle complications which give awful screaming Charlie horse spasms. And the fear of the knee giving way and me, at 84, taking a header face down! GONE with CBD. I use it every 4-5 hours and I am completely mobile, can go up and down stairs and move laterally without pain..getting in the car or sitting down for long periods in a chair was terrible. The only trick is titrating it to one’s own needs but I found nothing to fear as to side effects. It’s based on body weight and milligrams. You may have to call the company to straighten that out. There are lots of things for normalizing BP. L-arginine and cinnamon come to mind...not together I suppose. We used arginine under docs care to wean him off BP drug (doc and his doc wife both used arginine) and within a month, he was stable. Assume you take a good multi like Purecaps. Sounds like you need a naturopathic doc.