Sinemet Has Left the Building

[Farooqji]

parkinsonsnewstoday.com/201...

[Icequeen10]

thanks ,interesting

[WinnieThePoo]

We've just taken Dad off rotigotine and put him back on sinemet 25/100 qds and he's miles better. Not convinced there's any difference in the generic apart from a brand name. Dad worked for MSD for over 40 years and was part of the sinemet launch but it's just branding

[RS313]

This is really ridiculous! with so many having PD how can they run out of meds? I have been getting the generic made by Mylan and i was just told my pharmacist cant get it either i cant take the Sun brand because it didnt cover my symptoms and now they are trying to force me to take it again! UGH!

[campos1004 in reply to RS313]

you wonder insurance companies and drug companies rule patients lives

[RS313 in reply to campos1004]

sad!!!

[GillRob4]

Same here, other brands just make me feel rubbish, only one other I was ok on was Teva and now they can't get that either. I am thinking of trying Macuna at least that is more natural and maybe less side effects.

[Johnboy46]

Last November I posted that I couldn't get Sinemet in South East England. I was put on a German generic which was very poor. My tremor got worse,I lost my sense of smell and started having balance problems whilst on the generic. The supply was started again in March. With the return of Sinemet unfortunately the symptoms didn't change but haven't gotten worse. So I can't see a very bright future if Sinemet isn't available.

[Bgktoby]

OMG! The author's situation parallels my own. I took Teva C/L generic for years until it was discontinued in 2017. The other generics I tried did not measure up. As a last resort I tried branded Sinemet which worked for me. For that relief I was willing to pay $300 vs. $15 for a 90 day supply. Now I have to go through the process again, but today there are fewer choices/sources available in the generic marketplace.

[Kwinholt]

Yes I agree not all the generics work the same. They want us to believe they do but we know they are not. The generic that works for me is the SUN manufacturer bc it does have an additive that makes it more water soluble and gets into my system better. The one that made me feel like I was back at day 1 was from the Avanti manufacture. I have a pharmacist that specially orders from the SUN manufacturer for me . He is the only one out there that I’ve found that is so accommodating to everyone and understands that not all genetic meds are the same. When I was trying to find the SUN cd/ld I had a pharmacist actually say to me that the meds are all the same and that I just haven’t came to terms that my disease is getting worse and the meds just aren’t working that well anymore. 😡 I was ready to jump across the counter and pull her down by her ponytail. I said a few things and told her , unless you experience this disease , don’t second guess the people who are looking to you for help to get the meds they need. Don’t let anyone stop you from finding which one works for you and I was told it’s the pharmacist job to try and get the meds that work . A lot of people have reactions from different additives ect so they special order the meds. Stay demanding ! Karen

[Juliegrace in reply to Kwinholt]

A good pharmacist is worth their weight in gold.

[Cjbro2000]

The one that works for me is from Mayne Pharma. My pharmacy switched me to Sun and I immediately noticed my tremors had become almost as bad as before I began taking meds for my PD. I had them switch me back to Mayne and it’s working great. MMaybe we all react differently to different generics.

[Kwinholt in reply to Cjbro2000]

Absolutely . You and I are proof of that since the SUN manufacture is the one that works for me. I just don’t get why when we express this to most pharmacist, and some doc ( although my dr gets it) they think we are not being realistic about our disease.? It just goes to prove with anything what works great for one doesn’t always work for all. Take care. Karen

[20fatcats]

Its usually the coating on the tablets and/or the substance they use to disperse the medication into the body that causes the trouble.