Hello all

[Superb1953]

My name is Penny and I am a caregiver for my husband who has Parkinson’s. Hope you all have a great day

[Hidden]

We wish you the best on your journey.

[Icequeen10]

I am happy to meet you, Penny. I am Paula. This is a great place for you!

[Farooqji]

the chair position is very unsafe. The back legs are very near to the concrete floor adge

[Shaker33 in reply to Farooqji]

I agree.

[Gioc in reply to Shaker33]

And now you say it? 😊

[Motherfather]

good for you girl as some people cant live with a p.d partner weather they are male or female wishing you luck on your journey as it might get a bit rocky along the way so hold tight and i wish you luck on your journey the both of you.regards john

[Paradox1]

Likewise Penny for you and your Husband

[wifeofparky]

Hi Penny.

Welcome to this forum. The people here are great. My husband had PD and now I facilitate a Support Group for Caregivers. I strongly suggest you find one near you and join. Knowledge is power and knowing you are not alone is very helpful.

[Health1961]

Glad you found this forum. There are a lot of us in your shoes who can benefit from kind words and understanding. I awake each day wondering what is ahead and knowing that my life has taken a direction I never planned on. It can be very lonely to suddenly have so much responsibility when all used to be shared.

[Hidden]

Diagnosed 2012

My regimen:

The positives: no bradykinesia, I cut my food with a knife, no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms...

Entering my 7th year post diagnosis and have not fallen, not once, to the surprise of my neuro. Was seeing neuro every 6th month, last visit he set app one year. He said if needed we could do some changes earlier. He said my condition can change in as little time as one week.

New schedule, now I follow this regimen:

3 x day C/L 50-200 ER : 8 am, 2 pm, 8 pm. Because it is ER, I take with or w/o food.

2 x day (8 am 2g, and 2 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:

(Thiamine HCL is oral substitute to injecting B1) 2 x day (morning 2g and at lunch 2g)

Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever...".

Parky people say the first five years is your honeymoon stage with Parkinson's. After that, progression more rapid.

I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –

Doctor Costantini - “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.

Join my facebook group:

"parkinson's thiamine hcl"

facebook.com/groups/2322600... ; …

Parkinson's Relief, Questions and Answers

Guide:

1. Read page, About, open links.,

2. On Files page, open B1 FAQ document.

3. On Files page, download First Appointment document, answer and submit.

4. read Announcements

5. Website: Dr Costantini's guidelines on Parkinson

stopparkinson.org/en/table-...