Progression of PD: I've been living with PD... - Cure Parkinson's

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Progression of PD

zadok459 profile image
22 Replies

I've been living with PD since 2008. I lately recognized a decline in my condition. I'm generally weaker and find my walking(4km a day) and exercise routine more difficult. Do you fight it and carry on as usual which puts a lot of stress on you or do you accept the deterioration and adapt to a smaller world?

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zadok459 profile image
zadok459
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22 Replies
johntPM profile image
johntPM

Have you tried increasing the dose? There are very good reasons to keep up with the walking and exercise: your drug regimen should be set to enable this to continue.

zadok459 profile image
zadok459 in reply to johntPM

I'm hesitant to increase IT IF MY DOSAGE ARE TO HIGH I SUFFER DYSKINESIA. BUT MAYBE IS SHOULD INCREASE IT A BIT AND SEE. BUT I HAVE BEEN TAKING THE SAME DOSAGE FOR 2 YEARS

vwolff profile image
vwolff in reply to johntPM

John that link goes nowhere. I'm accessing it from Wisconsin.

johntPM profile image
johntPM in reply to vwolff

I think you have the wrong John: my reply had no link. Did you mean JohnPepper?

vwolff profile image
vwolff in reply to johntPM

Yes I meant to reply to John pepper sorry

JohnPepper profile image
JohnPepper

Hi zadok. W hen you say you walk 4 Ks a day, do you walk as fast as you can? Do you know what Fast walking can do for you?

If you look at my website - reveresparkinsons.net you can see what fast walking has done for me. I have been Pd medication-free since 2002 and have lived a normal life since then. I still have Pd but it is totally under control.

Contact me and I will help you, FREE OF CHARGE!

zadok459 profile image
zadok459 in reply to JohnPepper

Thanks I will do so

whatadrama profile image
whatadrama in reply to zadok459

Tru niagen is number one on the list of most popular articles of interest for "parkies"

Just Google and read all about it,.

jeffmayer profile image
jeffmayer

this horrible condition brings up different things everyday the only way forward is to keep fighting and never let it win

zadok459 profile image
zadok459 in reply to jeffmayer

Yes it's different fight everyday. If it's not motor function then it'd some automotive dysfunction. I bought some equipment to do photobiomodulation

GymBag profile image
GymBag

"Do you fight it and carry on as usual which puts a lot of stress on you or do you accept the deterioration and adapt to a smaller world?"

Neither.

You fight it as hard as you can in ways that suit you that produce least stress and you make it better, Diversify, use several methods.( it takes time investigation and practice.) and you prepare for the future and adapt to a different world with different expectations. You must change every aspect of your life , giving up is not an option because there is no do over.

Enjoy yourself when and where possible , make life better for yourself and those close to you and be happy.

easy to say, hard to do, but you can do it.

zadok459 profile image
zadok459 in reply to GymBag

Thanks wise words I have continued regardless but some of my symptoms prevents me sometimes.. Good luck !!

jeffmayer profile image
jeffmayer in reply to GymBag

#

I completely agree once negative thoughts enter the situation in my opinion your knackered so keep fighting and kick its backside

PDConscience profile image
PDConscience

Note: ‘MARFF5’ just today joined HU PD forum in order to shill his herbal voodoo formula.

zadok459 profile image
zadok459

MY CONDITION STRESSES ME .. I will have to learn to accept it and still fight it

boundless profile image
boundless in reply to zadok459

I think that is very hard to do. I have been fighting my condition now for 2 years and I'm afraid to say. nothing has changed.

zadok459 profile image
zadok459 in reply to boundless

It probably took me 5 years to work out a lifestyle. But just when you're there - it brings a further storm end regression. Good luck Google Photobiomodulation

jeffmayer profile image
jeffmayer in reply to zadok459

unfortunately there is no option you have to fight we all get despondent but we have to keep fighting this shite condition and not let it win don't let it rule your life try and keep pushing life is precious not to be controlled by this condition

zadok459 profile image
zadok459

I would like to hear more - I live in South Africa though where are you?

KERRINGTON profile image
KERRINGTON

For years I have been fighting diminishing energy through food, supplements, and exercise with poor results. I'm a vegetarian, and even tried adding meat to my diet.....through HU posts I found Tru Niagen. After researching it many times, I decided to try it. I take 2 every morning, and feel 60-70% improved.

Enidah profile image
Enidah

I give myself days off from the good fight when I need them. I find it refreshes me to continue on. We are all in the uncomfortable position of needing to except our situation but also doing the best we can to not give up. I am trying to do better about recognizing the courage and resilience this requires and giving myself an occasional pat on the back instead of just thinking I should be doing better. I may need exercise but I also need kindness, lots and lots of kindness.

billiards profile image
billiards

PD is a peculiar condition which does not inform you of progress or digress. therefore we have to consult the neuro-surgeon every now and then ultimately after a while you sometimes feel that your Dr. is unable to guide you as there is still not any increase in knowledge and treatment discovered medically to help you to stop progress of the decease as such and as long as you treat the symptoms of the decease . Till such time exchange between our selves experiences & changes however minor they may be request the researchers to follow it up.

regards BILLIARDS

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