This Is a bad decision: This is a bad... - Cure Parkinson's

Cure Parkinson's

26,504 members27,915 posts

This Is a bad decision

Patman60 profile image
15 Replies

This is a bad decision. You make yourself a judge and jury of all recommendations Made on this formn. What qualifies you to make These decisions.? You acknowledge that you’re not a doctor And even if you were information contained here in this forumn Is so varied and Can envilve such complexity That no doctor could effectively advise. We are all big boys and girls here and realize clearly that it is reader beware This is the very nature of forum

Your decision has reduce the value of this forUmn

Written by
Patman60 profile image
Patman60
To view profiles and participate in discussions please or .
15 Replies
Farooqji profile image
Farooqji

Sorry couldn't understand what you want to say. sorry for low IQ

M-o-ggy profile image
M-o-ggy

Have I missed something

Patman60 profile image
Patman60

Sorry I posted where I should have responded to the post regarding removing Dr. Costantini b1 be info. So much for using a smart phone :-)

BUZZ1397 profile image
BUZZ1397 in reply toPatman60

Oh that explains it, sort of. :-) Using a smart phone can be so dangerous!

MBAnderson profile image
MBAnderson

Pat man 60,

We are all saddened by his decision and I can see some of us are hurt and maybe even angered, but we need to be careful not to condemn him for his choice.

Actually, if I remember correctly, Easilly was not affected by Parkinson’s disease. I didn’t understand his passion for the B1 protocol and this surprising post using a new assumed identity doesn’t pass the smell test.

enjoysalud profile image
enjoysalud

I do NOT have PD or any other neurological disease. My son for almost 3 years was under a dx of PD....later it was changed to PSP. While under the belief of PD, as his caretaker, I was an avid reader of this site.

Perhaps I have not interpreted Easilly's (safetyfirst) recent post correctly. My interpretation was an announcement to us that he was taking down a site, HE HAD ORIGINATED and his reasons. I believe/understand we each are entitled to do that.

Each of us can still use Vit B1hcl, we can each read shares and posts by others on Vit B. We can each do research. What we CANNOT DO is access the site where Easilly did all the work for us.

Stazina profile image
Stazina in reply toenjoysalud

I think my husband may be misdiagnosed with PD, can you tell more about your son's experience? Thanks

enjoysalud profile image
enjoysalud in reply toStazina

Hi, at the beginning of a brain nuerological disease, almost always the DX is parkinSONISM. What happens is that we hear Parkinson's. My son's nuero dx Parkinson's and told him it was a very liveable disease. Since the symptoms of almost all neuro diseases are usually the same (but not always in the same order of appearance) it is given the label of ParkinSONISM.

My son's nuero skipped the "sonism" and went direct to "son's"

My son's symptoms continued to progress and multiply. At the end of the 3rd year it was changed (re-dx) by a different neuro to Progressive Supranuclear Palsy (PSP).

I would encourage you to watch on youtube Jim Bower of the Mayo Clinic, "MAKING A DIAGNOSIS OF PSP, CBD, OR MSA". It's well worth the watch.

No diagnosis can be proved/confirmed until death with a brain autopsy.

I hope I was helpful.

Los Angeles, CA, USA

Stazina profile image
Stazina in reply toenjoysalud

Thank you, yes very helpful.

jimcaster profile image
jimcaster

The good news is that the posts themselves are still on this forum. They can still be obtained through the search function...

MarionP profile image
MarionP in reply tojimcaster

That will not last long, Jim. Somebody big is after him and finds a commercial threat to his work. Think chess, the first move is the first in a long, thought out strategy. His influence will be systematically erased. You never read 1984 and "unhistory?"

Also I suspect that we will not see or hear from Dr. Costantini again.

in reply toMarionP

😂

PDConscience profile image
PDConscience

Synaptic misfire?

This has all gone far enough. Why don’t you put in the work that Art did? You are an ungrateful lot.

Not what you're looking for?

You may also like...

Is this progression normal

My husband, diagnosed 2015, is really struggling. He feels rough all the time. Main symptoms are...
Abinat58 profile image

The Decision to Take Medication or Change your Lifestyle?

When patients are diagnosed with Parkinson's disease (Pd), they are faced with possibly the most...
JohnPepper profile image

S H O U T O U T L O U D !

As you know, we frequently run polls on this website, on all aspects of patient experience. That's...
JonStamford profile image

Capable of work ? Or not............................

Having recently been forced to retire (at 46yr young) from a career that involved fighting fire and...
Helshubby profile image

Husband ANXIETY is getting REALLY BAD

Anyone who has extreme Anxiety & "Inward tremors" (as he describes them), please share what you do,...
dhill profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.