Introduction

[Hughesfamily]

Hello my name is Grace, I want to know more about this disease that’s taking my husband away from.

[Hidden]

Youtube has very informative videos and authored by highly respected doctors of neurology.

Bring your husband back. My condition was in decline. My wife had to help me do simple tasks.

I

Diagnosed 2012

My regimen:

The positives: no bradykinesia, I cut my food with a knife, no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms...

Entering my 7th year post diagnosis and have not fallen, not once, to the surprise of my neuro. Was seeing neuro every 6th month, last visit he set app one year. He said if needed we could do some changes earlier. He said my condition can change in as little time as one week.

New schedule, now I follow this regimen:

3 x day C/L 50-200 ER : 8 am, 2 pm, 8 pm. Because it is ER, I take with or w/o food.

2 x day (8 am 2g, and 2 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:

(Thiamine HCL is oral substitute to injecting B1) 2 x day (morning 2g and at lunch 2g)

Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever...".

Parky people say the first five years is your honeymoon stage with Parkinson's. After that, progression more rapid.I

I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –

Doctor Costantini - “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.

Join my facebook group:

"parkinson's thiamine hcl"

facebook.com/groups/2322600... …

Parkinson's Relief, Questions and Answers

[Chicafromchitown in reply to Hidden]

RoyProp

I started the b1 protocol, am I taking correctly? I take the exact same one you take from Vitacost, how do I convert a 500mg caps to 2g?

[Hidden in reply to Chicafromchitown]

4 caps = 2 grams

[Chicafromchitown in reply to Hidden]

Got it!!! Thank you 😊

[Moorhen2002 in reply to Hidden]

Please RoyProp what make of B1 from vitacost do I need to get, is it their own brand and does it have fillers as someone mentioned that is is best to avoid them, what is the best amount to start on, it's all so confusing. Many thanks .

[Hidden in reply to Moorhen2002]

I am not concerned they have minute amount filler.

Start 4 grams daily.

[Moorhen2002 in reply to Hidden]

Thank you i can now order some if its available and start on it asap your advice is much appreciated.

[Hidden in reply to Moorhen2002]

facebook group:

"parkinson's thiamine hcl"

Guide:

1. Read page, About, open links.,

2. On Files page, open B1 FAQ document.

3. On Files page, download First Appointment document , answer and submit.

4. In Files, Dose Adjustment

5. In Files, (2) From and by Dr. Costantini

6. read Announcements

[Moorhen2002 in reply to Hidden]

Thank you Roy, I may have to enlist one of my sons or grandsons to guide me through that but one way or the another I'll. manage it !

I'm not too bad with computer tec but there is always something new to learn and just when you think you've 'got it' it all changes.

What's the saying 'easy when you know how'!!

[JohnPepper]

Hi Hughesfamily. My name is John Pepper. I have been able to overcome many of my Pd symptoms by doing the following:

1. Taking an MAOb inhibitor (Selegiline) for eight years

2. Walking Fast, for one hour, three times a week. (I started for 20 minutes and built up to one hour over six months)

3. Being positive!

4. Keeping my mind active by doing Su Doku puzzles, learning to speak French, playing Bridge etc.

5. Getting rid of all things that stressed me.

6. Learning how to CONSCIOUSLY CONTROL THE MOVEMENTS WITH WHICH I WAS HAVING TROUBLE.

Pd is a brain problem, which affects everything we do. It is the brain we have to fix.

No Pd medication, other than possibly MAOb inhibitors have ever been proven to slow down or reverse the progression of Pd.

I stopped taking any Pd medication in 2002 and have been medication free since then.

Please look at my website - reverseparkinsons.net and contact me before you take anything. I will help your husband to possibly get better. It will be up to him to do all those things, but that is better than slowly getting worse and worse. It costs absolutely NOTHING!!!