Update Dr. Costantini ?

[Biensur]

Any news on our dear Dr. Costantini ?

[Hidden]

Biensur,

There is an existing post on this forum where an associate of Dr. Costantini, Dr. Marco Colangeli, has been posting updates on Dr. C as they have news to disseminate. Here is a link to that post and if you select the "Follow post" button on that post, you will be notified each time it is updated.

healthunlocked.com/parkinso...

Art

Here is a copy of the last update that Marco posted about two weeks ago:

Dear all,

There are a few updates about Dr. Costantini's condition and future, but before I jump into that I need to apologize on behalf of our group for not being able to keep up with all the requests of help received via email and through the website. This is due to the obvious constraints you all can imagine we have now that Dr. Costantini is recovering and unable to work, though since our priority is to help the patients we need to manage our time, resources and energy strategically.

Dr. Costantini's recovery continues positively. Sadly though, the stroke has damaged some areas of his brain causing movement impediments. Unfortunately, these are severe but luckily the rehabilitation center that is hosting him is very well equipped to provide him with the best cures and therapies available. This however, means that for a considerable amount of time, likely many months, he will not be able to get back at work and definitely no longer take over the huge amount of consultancy work he used to do, sometimes for even 14 working hours/day.

This is why we are channeling our - now even more limited - resources to guarantee the continuation of the experience with the HDT protocol, and to support PwP who have not taken B1 yet or are unsure about the right dose with this therapy.

Thanks to the invaluable help of a member of this forum, we managed to get in touch with the Michael J. Fox Foundation recently who informed us about publicly available funding opportunities for the research on PD. We are going to put all of our efforts into preparing the best funding proposal possible to make the most out of the limited resources and time availability we have now. The goal is to invest our time, including (if possible/appropriate) Dr. Costantini's time, to develop this proposal which will involve the clinical trial of the HDT protocol on a multi-location, international basis. To this end we intend to partner with research centers across the United States, Europe and elsewhere (compatibly with the requirements of the call for proposals) and supervise and carry out the clinical trial. In this way, patients will be given the opportunity to test the HDT protocol but instead of having the entire burden on our emailboxes, there will be other Neurologists and Practitioners that will be able to follow the treatment with Vitamin B1 in person rather than remotely. If funded, the trial and its results would be able to inform on the effectiveness of the HDT protocol, and if said results as we hope will be positive, they will allow other patients after our activity is concluded to try the HDT therapy in those research centers worldwide. This could happen without our direct involvement, which we could never offer given the magnitude and the number of requests we receive.

I will keep you posted on the next steps and if anyone is interested in being part of the trial you might contribute to the research as well as have the opportunity to test the HDT protocol for yourself, under direct, in-person medical supervision.

Wish me and Dr. Costantini luck.

Thank you

Best regards

-Marco

[Biensur in reply to Hidden]

Thank you Art!