Bluesparkley: I need some information on... - Cure Parkinson's

Cure Parkinson's

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Bluesparkley

Bluesparkly profile image
22 Replies

I need some information on how not to fall

I fall again today walking across the parking lot and down on my poor knees again

Please someone tell what I need to do

Yes I have PD since 2016 was diagnosed

Thanks

This place gives me lots of answers and support

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Bluesparkly profile image
Bluesparkly
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22 Replies
park_bear profile image
park_bear

There is more than one way to fall with Parkinson's. I have fallen a few times. The key for me to not to repeat has been to carefully go over what went wrong and strive to avoid that. So, what are the details of your occasions of falling?

Bluesparkly profile image
Bluesparkly in reply to park_bear

Like today just walking into work

I really don’t have any ideas

Every month I have fallen

Nothing in front of me

Thank you for the help

parkie13 profile image
parkie13

Some people have tendency to fall backwards, some people have tendency to fall forword. Have you tried a walker? They have some smaller ones that you can hang on to. You could try one in the privacy of your home and see how it could be helpful. Exercise with emphasis on balance.

Have you tried thiamine HCL? I'm very sorry about your falls.

Bluesparkly profile image
Bluesparkly in reply to parkie13

Need to check into thiamine HCL

Bluesparkly profile image
Bluesparkly in reply to Bluesparkly

Yes I take B1 twice a day

parkie13 profile image
parkie13 in reply to Bluesparkly

How long have you been taking it, and what's the dosage that you take?

Bluesparkly profile image
Bluesparkly in reply to parkie13

2 years

500 mg in am

500 mg afternoon

parkie13 profile image
parkie13 in reply to Bluesparkly

You must have read Roy Prop's emails. Different thiamine HCL dosages for different people. Maybe you could try upping it a bit and see if it makes any positive difference. The other thing I didn't mention before this maybe you could go for physical therapy. It has really helped some people. All the best Mary

Bluesparkly profile image
Bluesparkly in reply to parkie13

Ok I will up it

Thanks

parkie13 profile image
parkie13

One more thing, you have to be aware that you are picking up your feet. When I go up the steps I have to tell myself to pick my feet up. Try doing a Google search for balance exercises for Parkinson's.

Bluesparkly profile image
Bluesparkly in reply to parkie13

Thank you

Motherfather profile image
Motherfather

hi bluesparkly well one thing i do for balance is standing on one leg for as long as you can and change to the other leg you will find it hard at first but i have never fallen either foward or backwards i have been doing it for a long time im not sure how fit you are though but you can hold on to different things like a chair or other things until u get better at doing it regards john

Bluesparkly profile image
Bluesparkly in reply to Motherfather

Thank you

LTT0019 profile image
LTT0019

Physical Therapy the BIG Program. My insurance paid for it. The earlier you do the program the better. If to expensive look online for exercises etc. you can do on your own.

Mom was correct. My balance is better when I watch my posture.

STAND UP stright. stomach in - chest out- head up - focus your eye site out not down at the ground.

Bluesparkly profile image
Bluesparkly in reply to LTT0019

Thank you

sledge profile image
sledge

Good advice from the posters above. Another thing to conside is the possibility that you're experiencing sudden episodes of low blood pressure. Not uncommon with Parkinson's. In many cases, it doesn't give warning, like dizziness or light headedness. Important to rule this out.

Bluesparkly profile image
Bluesparkly in reply to sledge

I will check it out

Thank you

st8farm profile image
st8farm

Early on I was subject to falling and from time to time would black out momentarily. One of my more infamous ones was headfirst down a crowded stadium, landing about 5 rows lower onto the heads and backs of several gentlemen. At 220 pounds I was a good load to handle. Luckily no one got hurt severely. Point being, just after that fall I started on the B1 high dose. I use 8 - 500 mg capsules per day. I no longer shuffled, no longer stumbled, no longer blacked out, I no longer had stiffness in my legs and feet, etc. Everyone is different. However, what have you got to lose by upping your dose if what you do not need is urinated away? Play with the dosage. If double doesn't work in 6 weeks, try triple.

Oh, well, just my two cents. There isn't a day that goes by that I wouldn't kiss the feet of the good doctor if he were here. Good luck and good fortune.

Larry

Gioc profile image
Gioc in reply to st8farm

I happy for your improvements Larry, that’s that.

Gio

Bluesparkly profile image
Bluesparkly in reply to st8farm

Thanks I have increase

But maybe I need to go higher

AaronS profile image
AaronS

When you walk try consciously to put your heel down first then roll thru to your toes, do this on every single step. It sounds silly but I had to slow things down and kinda teach myself how to walk again, but when you consciously do it you tell your brain how you want to walk not your brain telling you how you should walk.... hope that makes sense :)

Bluesparkly profile image
Bluesparkly in reply to AaronS

Ok I will try it

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