Major operations and parkinsos: I was told... - Cure Parkinson's

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Major operations and parkinsos

Gedge01 profile image
15 Replies

I was told by my ortho consultant that it is not recommended that patients with Parkinson's have major operations. I need a hip operation and was diagnosed 2017 and take 1mg Azilect . The only symptom I have is poor walking due to poor gait and also balance issues. Any advice please . Thanks . Geoff Edge

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Gedge01
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15 Replies
adrienneb profile image
adrienneb

I had an operation for a spinal problem 2 years after my diagnosis with Parkinson's. I was advised at the time that one operation often led to another because the Parkinson's would cause problems in the future. I agreed to have the surgery as I was having so much pain that I felt it was necessary in any case because of my severe sciatica. I had a worsening of my Parkinson's disease symptoms over the next 2 months, but they resolved and I went back to baseline shortly thereafter. I suspect that the reason your doctor is discouraging you from having the surgery has to do with his or her experience with Parkinson's patients I would encourage you to strongly consider having the surgery, because only you know how much difficulty your hip is causing you. I believe you will find that you know more about your condition than any of your physicians do. As long as you understand the risks of having surgery, you are the best person to make the decision. I hope this advice has been of some help.

Gedge01 profile image
Gedge01 in reply toadrienneb

Thank you.

Geoff

park_bear profile image
park_bear

Talk to the appropriate person at the hospital and make sure they are on board with continuing your Azilect regimen.

Gedge01 profile image
Gedge01 in reply topark_bear

Thanks Geoff

Icequeen10 profile image
Icequeen10

I think you should have the surgery,

Gedge01 profile image
Gedge01 in reply toIcequeen10

Thanks for your help.

Geoff

tid1 profile image
tid1

There are certain type(s) of anesthesia that can cause problems for Parkinson's patients. If you and your doctor believe you need the surgery, then talk to the anesthesiologist and let them know that you have Parkinson's. There are other types of anesthesia which do not cause problems with Parkinson's. I had two major back surgeries in September and had no problems.

Gedge01 profile image
Gedge01 in reply totid1

Thanks for your help. Geoff

Juliegrace profile image
Juliegrace

I have also read about issues with anesthesia for PWP, so make sure the anesthesiologist is knowledgeable. I had an elective surgery on my foot about 2-3 years from onset when I was still in pretty good shape yet the recovery was much more difficult than expected.

Gedge01 profile image
Gedge01 in reply toJuliegrace

Thanks I will do as you suggest.

JohnPepper profile image
JohnPepper

I have had 2 discs removed from my lower back since my first Pd symptoms, one of which was long after diagnosis. I had no problems whatsoever with either operation.

If you look at my website - reverseparkinsons.net you can read how I was able to come off all my Pd medication in 2002, ten years after diagnosis. I still walk seven kilometres in one hour, three times a week. It costs nothing and my website costs you nothing.

I don't know what your major symptoms are, but it is well worth giving it a try.

Gedge01 profile image
Gedge01 in reply toJohnPepper

Thanks John. My only symptom is poor walking .

JohnPepper profile image
JohnPepper in reply toGedge01

If you contact me I will send you my instructions on learning to use your conscious brain to overcome your movement problems, including walking.

I will also send you my videos showing me walking.

Gedge01 profile image
Gedge01 in reply toJohnPepper

Hi John Thanks for the offer . I am diabetic and suffer from neurophy as well as early Parkinson's . My major problem is balance and walking my email contact is edgesga@hotmail.com

Butterflygirles profile image
Butterflygirles

I had colo-resection surgery 3 yrs ago. Tho I did very well I experienced an unexpected setback in recovery (balance, fatigue). Not knowing the potential problem I did connect it with the surgery somehow. Later, during one of my research modes I learned there is a connection with the anesthesia in PWP, and my thoughts were confirmed. (Even tho neither my neurologist nor surgeon knew about it). I may be facing surgery again before too long (cervical/spine) so hopefully I can proactively make good use of this information. Thanks for sharing.

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