Whilst I am still symptomatic on several areas I am pleased to announce that my handwriting is now fully restored to normal. Whether it’s exercise, mannitol or B1 is hard to tell but I suspect the latter which I have been taking for a year now. Debating whether to thank God or Doctor C, but I’ll thank them both anyway.
PS: interesting how one particular symptom had been reformed but others less so. How could this be explained?
thanks for sharing
Sometimes handwriting gets improved for limited time (my own experience ) and then deteriorate. Hope this not the case with you and this is permanent. BTW what is your dosage of thiamine
I am very happy for you Jeeves 😀
3g daily. Yeah, I know what you’re saying re. Relapsing but it’s been like this for about a week now so watch this space. And this is the best it’s been for 3 years. Interesting.
That's awesome, jeeves! You know, if it turns out to be HDT, that means you are responsive to it and that means the possibility of reduced or no progression is on the table now! Yeah, awesome!
Art
That's great news and encouragement for us all. Keep us posted!
You will see I have a similar question coming up on my poo thread. Its related to my question why does one problem (dopamine loss) manifest in so many different ways on different days. Glad to hear of the improvement. I have a large knot in my hanky to investigate B1 - as well as exercise and plasticity
Sadly Winnie I think the brain is a somewhat unfathomable entity. Easy to accept when one considers that it’s the most sophisticated object in the known universe!
jeeves, you can always stop the HDT to verify if it is the cause, because if it works, it will work again for you. That may pinpoint it as the cause or not and then you don't have to wonder. It could take months to lose the benefit though because you have been on it almost long enough to qualify for one of those HDT vacation/holiday periods that Dr. C has discussed.....not quite, but almost.
Art
Thanks Art. I shall consider my options!
Amazing news, mate!
Just hope it isn’t a blip!
i think its an UNSLIP! The PD is the slip
Great news jeeves19
Congratulations! Poor handwriting is the only symptom which really bothers me. Our regimens are fairly similar, although I have only been on B1 since May.
Thanks Jim. Stay strong and keep fighting this disease.
How long have you been on B1 protocol? My husband started in June of this year, his handwriting bounces back and forth from perfect, big and legible to smaller and somewhat illegible. Has been on 3-4 B1 breaks trying to adjust his dose, always under Dr. C.s' guidance. He is on B1 break again until 29 November per Dr. C's instructions.
Anyway you look at it, it is SUCCESS for you and my husband.
Well done. I think with Mannitol , B1 and exercise Parkinson's may not even be progressive. Your variant is particularly stubborn so I think that should give hope to many.
Have you had reduced stress too? My hubby’s writing is entirely dependant on his state of mind. It can be normal, then he starts beating himself up over something, becomes anxious and suicidal and the handwriting looks like spider writing.this happens in a regular cycle every month, then the next day he seems too bounce back. Begininnning to wonder if men have cycles too.
'All' my symptoms are mood/stress dependent. When chilled I'm say 80% normal, unfortunately, I'm almost permanently in flight or fight mode.
That’s so interesting. My husband says the same
heehee!
Always encouraging to hear of these successes. Thanks for sharing!
Here’s a brain puzzle. After 12 years of PD and increasingly failing all the neuro tests like drawing shapes and clock faces, etc., one day I saw my husband who by this time was quite deteriorated by the ravages if PD and heart problems, sitting at the table drawing something over and over....he NEVER drew anything in his life. I was in the kitchen nearby and couldn’t exactly see what he was doodling so I asked him what he was doing. As if I were a dimwit, he replied, “A perfect circle, of course!”
And so he was....over and over, totally freehand. I am an artist and couldn’t do what he was doing. It was so funny, I took a picture of him doing it....I wish I could post it for you all. Theres always hope!
Is he still doing well with the handwriting
Not really....he passed away from heart failure two years ago but I keep up with this site because we had such extraordinary experiences. Check out the story of Jay Alberts at the Cleveland Clinic taking his PD friend on a tandem bike trip. We jerry rigged a bike to do the same. Efficacious. Theracycle doesn’t do it. It must be “forced exercise”....a relatively new therapy.
It is interesting how large muscle exercise can help fine motor control. I have read about this in the past. Good work!
Jeeves -
Late to your news but great to read this.
Did you have any other problem with dexterity — typing on a keyboard, for instance - that improved along with your handwriting? That one-two punch - micrographia and typographia - too often turns writing into a test of endurance for me. (It’s why I’ve been pokey about posting/replying here.)
Also, was your handwriting the first symptom relief you’ve seen in the yr of taking the HCLB1?
M
Motal. I’m a reasonably mild case in the first place but am unsure if this would have been the case had I not exercised, fasted, mannitoled and. B1’ed etc. So my first result was staying put without further progression I guess. Don’t get me wrong, I still have times when both writing and typing can suffer (alcohol, stress etc) but generally there’s been a trend towards improvement in both.
Generally yes although I have the odd downturn it usually comes back good.
Let's discuss our speech issues
What is the longest you have ever went between your Parkinson's meds and still were able to function normally?
Vitamin B
How long before levodopa starts working when first introduced?
