Scalpel free Surgery: Another interesting... - Cure Parkinson's

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Scalpel free Surgery

jimcaster profile image
14 Replies

Another interesting advance...

sciencedaily.com/releases/2...

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jimcaster
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MBAnderson profile image
MBAnderson

Focused ultrasound for PD is being practiced in Korea, Israel, and Japan and probably other places, like Scandinavia. I remember having read a post on HU from someone who had flown to another country to have the procedure. Since it is already FDA approved for essential tremor, you would think it's being approved for PD shouldn't be too long off.

jimo2017 profile image
jimo2017 in reply toMBAnderson

approx 10years ago i was diagnosed with prostate cancer found a site YANA (you are not alone) and made contact with a lovely lady who told me husband went to Belgium for HIFU treatment (high intensive focus ultrasound) i had treatment carried out in Middleheim hospital by a surgeon called mr D Hont iam now 82 still here

Juliegrace profile image
Juliegrace in reply toMBAnderson

They were hoping to fast track it via the study I participated in, but as we all know PD is complicated and the results were not as good and easily obtained as they had hoped which is why the study has been expanded.

saraoutwest profile image
saraoutwest

I am very hopeful regarding this procedure. I know it’s not a cure, but by all accounts looks extremely helpful. I’ve already started saving....maybe at some point it will be covered by national health cover once FDA approved (currently in stage 3 clinical trials in US) I live in NZ, tremor dominant. I guess until then it’s HDT, healthy diet, excerise and hope.

Juliegrace profile image
Juliegrace

I participated in the early trial using FUS for dyskinesia in 2016 (patient #5). It was marginally helpful for a time, but I was a bit of an outlier and didn't have as good of an outcome as most of the other participants. They have expanded the study and I think they're still recruiting. I had the procedure at the University of Maryland (Baltimore) Medical Center and they're amazing. And, even though the procedure for ET has been approved, insurance companies are balking at paying for it (it's an expensive procedure). Having it done through research is free other than the travel.

healthunlocked.com/parkinso...

saraoutwest profile image
saraoutwest in reply toJuliegrace

Did it not help your tremor?

Juliegrace profile image
Juliegrace in reply tosaraoutwest

I don't have tremor. I was in the dyskinesia part of the study. It helped for a time but several other participants had better results.

PDConscience profile image
PDConscience in reply toJuliegrace

Yes, it's "free", but limited to a unilateral (one sided) application. In other words, you get half of a treatment for "free" when participating in current trials stateside. If you want bilateral treatment (i.e., for bilateral tremors, etc.), you may need to fly to Switzerland and pay the hefty out-of-pocket costs.

hanifag profile image
hanifag in reply toJuliegrace

Hi JUliegrace

was the procedure for Parkinson I am getting tested for the trial study at Stanford

my appointment for assessment is on 29 th Nov

Juliegrace profile image
Juliegrace in reply tohanifag

Good luck. I wish Stanford had been doing it when I participated. It was a lot of travel from Washington state back and forth to Baltimore, but I'm still glad I did it.

JANVAN profile image
JANVAN

Check also : sonimodul.ch/ I think this professor was one the first to do it, it's a very small clinic, but they already over 5 years experience. And in Switzerland it's covered by the health insurance.....

Xenos profile image
Xenos in reply toJANVAN

Sure, Janvan, but you have to be Swiss...

That said I would accept Swiss nationality any time... :-)

Juliegrace profile image
Juliegrace in reply toJANVAN

The US trial people have tried to contact the Swiss doctor; so far he has been unwilling to communicate with them.

JANVAN profile image
JANVAN in reply toJuliegrace

O.K.,,,, strange...

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