History Before Thiamine HCL: Roy Propsner... - Cure Parkinson's

Cure Parkinson's

26,583 members27,899 posts

History Before Thiamine HCL

17 Replies

Roy Propsner , October 2, 2015

Parkinson's report and prognosis:

I fast walk three miles (gentle hills in route) every other day. I have tremor dominant pd. I was dx three years ago. I take no medicines, herbs or dietary supplements... I have the traditional p symptoms with the exception of falling. My gait is somewhat affected by pd. I get around well, with only a hint of shuffling or instability. I recently started using an electric tooth brush. My right arm and hand is weak and my blessed wife has been cutting my meat into bite size portions. I do not know what beneficial effect walking has had but for now, it is my therapy. I am watching for the cure or treatment, especially ultra-sound surgery. Please keep me advised.

When first using an elect tooth brush, remove the clear protective brush cap. I did not. The elect brush made such a racket while I tried to brush my teeth (yes, I topped the 'brush' with paste) that I asked my wife to look at it. I thought I assembled it wrong. No, my wife did not laugh at me.

End Item

Read more about...
17 Replies
jujulini profile image
jujulini

whens the next chapter?

in reply tojujulini

Yesterday. Yesterday I moved my thiamine hcl dose to 8 a.m. and 2 p.m. Previously, 8 a.m. and 8 p.m. Formerly, 5 a.m. and 5 p.m.

These moves are/seem to improve my tremor.

Erniediaz1018 profile image
Erniediaz1018 in reply to

I visited my primary Dr today @5pm she said you're doing very well I don't see any tremor 😁. I wanted to tell her yes B1, but I don't think she'd understand.

in reply toErniediaz1018

Congratulations Ernie!!!! That is incredible news! You are the 24th person on this forum to report tremor improvement from B-1!

Just curious if you are using just the bulk B-1 powder and no B-1 pills or capsules?

One other question, would you please copy and paste your post as a reply to your original post on the "who is taking thiamine" thread?

healthunlocked.com/parkinso...

Thank you for the update!

Art

Erniediaz1018 profile image
Erniediaz1018 in reply to

Bulk powder from nutrivita

jimmydook profile image
jimmydook in reply toErniediaz1018

Could i ask how muchch b1you take ?

Erniediaz1018 profile image
Erniediaz1018 in reply tojimmydook

2 grams in the morning and 2 grams about 3 pm

in reply toErniediaz1018

That is my dose also.

healthabc profile image
healthabc in reply to

do u take levodopa in any form?

in reply tohealthabc

C/L 50/200

healthabc profile image
healthabc in reply to

I have sent dr c video's- dr c has told me i must start sinemet 25/100 along with B1 because they work synerggistically. does that sound accurate to u? I ask u because, like u, i am tremor dominant, diagnosed 3 yrs ago at 48 yo. i am concerned about developing dydkinesia ...

in reply tohealthabc

Sounds right to my understanding. Including no dyskinesia. Regardless, you have little choice.

AmyLindy profile image
AmyLindy in reply tohealthabc

Dr C also recommended I take Sinemet. I have to see my neurologist for a change from Selegiline ; not sure she will want to switch gears.

AmyLindy profile image
AmyLindy

Haaaa!

Erniediaz1018 profile image
Erniediaz1018 in reply toAmyLindy

😁

jrg54321 profile image
jrg54321

What's your date of birth?

shanaandbear profile image
shanaandbear

Read John Pepper’s book. “Reverse Parkinson’s Disease”! You are doing the right thing by your walking. I keep this book next to my bed on my nightstand to refer to and keep me inspired. John Pepper is MY HERO! 👍❤️

Not what you're looking for?

You may also like...

report and prognosis

I fast walk three miles (gentle hills in route) every other day. I have tremor dominant pd. I was...

Thiamine hcl update

I have been on thiamine for just over three months ( 7x300mg tablets a day, i e 2.1g). We sent the...
Celtis profile image

Thiamine hcl update

In December I wrote to tell Dr Costantini that my initial response to the thiamine, which had been...
Celtis profile image

Thiamine HCL positive side effects?

Before being diagnosed with PD in early 2017 I was diagnosed with osteoarthritis. I had pain in my...
ion_ion profile image

Integrity of Thiamine HCL Powder when it hardens in storage.

I have spent some time searching for a “definitive” answer to something that intrigues me rather...
D_Korolev profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.