B1
I did extensive blood tests that test the... - Cure Parkinson's
I did extensive blood tests that test the vitamins in the white blood cell and found no b1 thiamin deficiency. Should Thiamin be taken anywa
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Bdekel
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20 Replies
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Bdekel,
The majority of Dr. Costantini's patients in his office in Italy show thiamine test levels in the normal range prior to starting on B-1 and once on B-1 their levels go way above range. This is their normal on his thiamine protocol. Standard testing does not show brain levels of thiamine.
Art
Bdekel in reply to
I will be happy to see reasearch about takilg b1 and parkinson and some nourologists doctor's opion.
in reply to Bdekel
Most neurologist are not even aware of B-1 for certain neurological disorders and many people on this forum have found that their doctors are not at all open to the idea of high dose thiamine. I know with two of my pd friends, their doctors would not even look at the studies that Dr. Costantini has done when they brought the studies with them on their regular visit. There are no studies that actually look into how and why of thiamine in PD.
A couple of forum members have said their doctors were willing to consider it and one of the two had actually heard of Dr. Costantini and his B-1 protocol and was willing to incorporate it as part of the treatment plan, but that is the exception and not the rule!
Many PWPs taking B-1 are doing so based on the known safety profile of B-1.
Art
Take thiamine hcl only if you are a believer.
Nitro53 in reply to
Roy, sounds like a placebo if you have to believe
in reply to Nitro53
Nitro53,
I think many people who start out with B-1 are skeptical because the exact method of action remains unknown.
I also think the placebo effect can not at this time be 100% completely ruled out either, but if it is a placebo effect that allows B-1 to work for up to 5 1/2 years so far for many PWPs, then I would submit that it is a viable treatment option for many PWPs, even if it is just a placebo effect ! If a PWP takes an alternative for their PD and it is working well for them, I am highly doubtful that they would stop as long as it is working, placebo or real effect.
Let's say that you have been taking B-1 for 5 years and at 5 1/2 years it is some how discovered that thiamine is working via a placebo effect. Would you stop taking it if it is still working for you upon that discovery?
Art
Gioc in reply to
A believer has faith. An observer studies, tests, observes and evaluates and then eventually has a certainty. Perhaps in this case a little confidence to start trying is necessary. Roy was one of the first here on HU to experience the B1 and to document his experience that speaks clearly, just read it. We all benefited from this experience; we must be grateful to Roy for writing it here. Thank you Roy!
in reply to Gioc
You,re most welcome. Thank you for your postings.
Levadopa is a placebo. Many other P drugs are placebos for they do not stop progression nor stem symptoms with many PwP
Nitro53 in reply to
Not true
in reply to Nitro53
So you are a believer
Nitro53 in reply to
A believer in C/l
Gioc in reply to
I am simply very happy that thiamine works for me and others even if I have not healed. Before I was very worried about the future, now much less. We'll see.
I am a believer in the fairy tooth. I can? 😀🍀⛄️🌼🌸🌷
So true Gio! Faith is believing without seeing or needing evidence. When it comes to our health we would like some evidence. We wouldn’t have surgery if the surgeon said “I have no idea if this will help you.” I think Dr. C has the evidence which for many is enough. Some want to hear it from their own Dr.; but After seeing several neurologists all seem to only be interested in the pharmaceutical route. Dr. C’s results are enough for me plus he is a neurologist himself. It’s not like he is just some regular person with PD saying this works for me.
park_bear in reply to
Nothing wrong with the state of not knowing.
JerMan22 in reply to
I didn't start B1 as a "believer". More like an "open-minded experimenter".
How do you become a "believer" in something that has so little support from other neurologists, unless you are willing to try it to see for yourself? I'm seeing some positive results but it's too early to say that I'm a "believer". Give it enough time and I might become one.
The gods laugh in their sleeve.....
