apomorphine

[Farooqji]

has anyone tried it?

[Choc777]

Yes...I’ve been on it for over a year...

[Farooqji in reply to Choc777]

what symptoms it treat, ? how much effective is it

[Choc777 in reply to Farooqji]

I have advanced PD and I have what you would call severe Bradykenisia I resemble a comatose person without meds, the effectiveness is seen more on the consistency side basically I don’t get the on and off periods much anymore, the other thing is that you can’t overdose on it unlike oral meds. I will say that I’m still not a fan of the daily needle setup, the cumbersome pump but honestly it’s does do the job well .

Do you know much about it...BTW I’m in Australia

[Grasss1973 in reply to Choc777]

Thanks for the info. Can a family member set up the pump for you, or do you have a nurse come to your house to set it up ?

Also wondering if you are able to walk once the drug is in your system?

Thank you.

[Choc777 in reply to Grasss1973]

I'm sorry for the late reply....

The initial setup needs to be done by a specialised nurse, after the setup was finalised my wife was taught how to change flow rate etc...it’s come in handy. As far your other question regarding walking the short answer is Yes - sort of, what happened to me was "unusual" to say the least read on and hopefully you’ll understand why.

This occurred approximately 2 1/2 years ago....

Sunday night I literally hit the ground in a motionless comatose heap, pins and needles, no strength to stand up, walk or talk. We managed to get to see my neurologist on the following Tuesday afternoon and the conclusion was that my desire to stay functional for my family through an extended period of time I over did the Parkinson's medication till the excess was more than my body could handle so it shut down, what we also found through an MRI on my neck and as a CT scan had shown earlier that there was a severe compression and damage to on my spinal cord which was partly why I couldn't walk, it was a seperate issue to the Parkinson's, that moment I was urgently admitted into hospital ....what was supposed to be a week stay eventuated to 3months

Since then they have introduced a pump which delivers a continuous flow of apomorphine medication at a set rate p/h, instead of highs and lows of the tablets which were not really working anymore. I've eventually had neck fusion surgery (C3 and C4), initially I was unable to get around without the aid of a wheelchair, I'm now able to stand and clumsy walk with a walking stick, it is still unclear why I can’t walk normally ...one specialist says it’s the Parkos another one says it’s the damage done....

[matthias_baum]

I am since 3 years on apomorpin sc infusion and feel an ongoing good effect in my Parkinson (no tremor, more tonic symptoms despite dbs),