Caffeine pills

[TheGimba]

Hi All,

My 54 year old husband has had PD for approx. 8 years. A nightmare for the most part. He suffered with such a debilitating sleep disorder that he almost lost his part job. Our family life was semi destroyed from his inability to function. He had brain fog much of the time and slept for hours at a time during the day. A neuro shrink put him on Concerta to wake him up which made him agitated and aggressive, further threatening our ability to function as a family unit. Recently a neuro put him on caffeine pills. He has been amazing for three days now. He hasn't slept during the day, he is able to focus, get his job done and is generally in good spirits. I feel like he is back in our life again. Sadly his stiffness is getting much worse. I feel like we could have had a few more good years with our young daughter if docs would have experimented with him a little in the beginning. In Canada the year long waits for neuros and six month check ups do nothing for younger patients who are struggling to maintain jobs and parenting responsibilities.

Oh, regular coffee is not enough apparently...

For those who suffer with day time sleepiness, give it a try.

[park_bear]

Good to know of this result. Your story underlines the fact that if the neuro's prescription is not working we need to be pro-active in solving our problems.

[ryanJames1]

Hi

I am tremor dominant but had recently started feeling a bit stiff on left side

After starting Mannitol I am much improved

[Motherfather]

what else is he taking as well as the coffeine pills.

[TheGimba in reply to Motherfather]

Hi,

Levo/carbo 4 times a day and Entacapone plus 200 mg. caffeine, 2 times a day, but he cut caffeine dose in half.

[Motherfather in reply to TheGimba]

might be a good idea if he tried thiamine as well you can buy them in pills or needle from your doctor.he will tell u how much to take.u can buy them from the chemist the pills that is.

[TheGimba in reply to Motherfather]

Hmmm....will do, thank you!

[Dragona]

are these available in the chemist shop thank you

[TheGimba in reply to Dragona]

Caffeine pills in Canada are available in your local drug store. I'm not sure where you live?

[jrg54321]

Did he try espresso?

[TheGimba in reply to jrg54321]

Oddly, he used to be a coffee drinker, before getting Parkinsons, now he doesn't care for it much...Pills are much more intense apparently. Haven't tried Espresso, might if pills get him too agitated.